Forum Discussions (313)

Featured Discussions

dress shoes for afo brace.

Just had my fitting for a afo brace. I wear dress black pants. All I can find are neon running shoes, and shoes that look so heavy I would…

Started by Veronica in GeneralLatest Reply

Numb foot/feet/hand?

My left foot is heavely numb. Anyone else with numb feet?

Started by HM in GeneralLatest Reply


Moderator

Tell me something good...

Lets change the mood a little, please share something good that's happened to you, or are looking forward to!  Tell me somethin' good! 

Started by SK in GeneralLatest Reply

Discussions Replies Latest Activity

Moderator

Tell me something good...

Lets change the mood a little, please share something good that's happened to you, or are looking forward to!  Tell me somethin' good! 

Started by SK in General

8 2 hours ago
Reply by SK

Numb foot/feet/hand?

My left foot is heavely numb. Anyone else with numb feet?

Started by HM in General

3 11 hours ago
Reply by braylin's gramma

dress shoes for afo brace.

Just had my fitting for a afo brace. I wear dress black pants. All I can find are neon running shoes, and shoes that look so heavy I would…

Started by Veronica in General

0 13 hours ago

AND THIS 'TAKES THE CAKE!..INCRREDIBLE!!

If you've followed my story here, you will have noted an unnecessary spinal stenosis surgery a year ago....6 months rehab just to walk,,,Th…

Started by chuckk in General

14 on Tuesday
Reply by SK

Anybody from the Philippines?

would like to connect with you to share experiences and a way to vent off.. thanks

Started by rich in General

5 on Tuesday
Reply by SK

MY YEAR LONG RIDE!!!!

Hello all....In short, had failed back surgery for spinal stenosis a year ago...I only had bad numbness beneath my feet..HEAVINESS!!!!...…

Started by chuckk in General

12 on Sunday
Reply by chuckk

An introduction...

Hello all,This is just a little (huge) intro since I'm new to the group. I'm a 42 year old man (boy) with CMT1A.I was diagnosed with CMT wh…

Started by chad in General

9 on Saturday
Reply by SK

how is.....

Hi everyone I just wanted to check in and see how everyone is doing with the weather changes? The worst part for me is the wind and trying…

Started by jnj2008 in General

8 Oct 24
Reply by jnj2008

Moderator

Who are the parents of a child with CMT?

We have an ever growing number of parents of children with CMT joining the group. Please let us know who you are and what your Doctor has s…

Started by SK in General

5 Oct 22
Reply by CM

Moderator

Trying the Lidoderm patches again...

I'm having trouble numbing my lower back long enough to lay down and get to sleep, so I'm revisiting the Lidocaine patches again. Anyone el…

Started by SK in General

2 Oct 14
Reply by SK

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