Forum Discussions (260)

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Moderator

What are your biggest physical challenges?

We all have them, as you know, mine is spinal. What areas of your body has CMT hit the hardest and presented the biggest challenges? I reme…

Started by SK in GeneralLatest Reply


Moderator

Are you familiar with the 'People First Language'? What are your thoughts on this, it's seems to be controversial?

http://www.disabilityisnatural.com/explore/people-first-language

Started by SK in GeneralLatest Reply


Moderator

What works best for your joint pain?

I think I need a new drug, any ideas or suggestions?

Started by SK in GeneralLatest Reply

Discussions Replies Latest Activity

Moderator

What are your biggest physical challenges?

We all have them, as you know, mine is spinal. What areas of your body has CMT hit the hardest and presented the biggest challenges? I reme…

Started by SK in General

15 10 hours ago
Reply by Karen

What type of music comforts you?

Of course, there is no right or wrong answer. What type, brand, era, genre of music do you listen to when you're looking for comfort?

Started by Armando Abrero in General

3 yesterday
Reply by SK

PXT3003

Hi! Pharnext is developping their pleotherapeutic medication PXT3003 for CMT1a.  http://www.pharnext.com/pipeline/cmt-program Phase II was…

Started by HM in General

53 on Tuesday
Reply by HM

Moderator

Are you familiar with the 'People First Language'? What are your thoughts on this, it's seems to be controversial?

http://www.disabilityisnatural.com/explore/people-first-language

Started by SK in General

3 on Tuesday
Reply by braylin's gramma

finding Housing

Hi everyone I don't know if anyone has had this problem before or not but maybe someone out here can help us.  Our landlords right now don'…

Started by jnj2008 in General

4 on Saturday
Reply by jnj2008

Moderator

What works best for your joint pain?

I think I need a new drug, any ideas or suggestions?

Started by SK in General

6 on Saturday
Reply by HM

Moderator

Chairs, do you have a favorite?

With having a bad back, finding the right chair is a challenge! I'm like Goldilocks going from one to the other! The longest periods I spen…

Started by SK in General

11 Jul 24
Reply by jnj2008

Moderator

Which type of CMT do you have?

Though most of you have probably mentioned this in one of your responses or posts, if you have no objections, please tell me again. As you…

Started by SK in General

21 Jul 23
Reply by SK

Moderator

Has anyone found that Wellbutrin reduces neuropathic pain?

http://www.cmtausa.org/index.php?option=com_content&view=article&id=111&catid=15&Itemid=50

Started by SK in General

2 Jul 21
Reply by SK

Sean Vitka & Blue Redefined Patient Organization Sponsors Ben's Friends

Thrilled to announce that Ben's Friends received a $1,500 donation from Sean Vitka and Blue Redefined (http://www.blueredefined.org/), a no…

Started by Scott Orn in General

1 Jul 21
Reply by SK

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