Forum Discussions (276)

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Moderator

Copper wear?

I have a Tommie Copper shirt and shorts that I wear when it's cool enough to wear under my regular clothing, and it seems to help a bit. Th…

Started by SK in GeneralLatest Reply

Fatigue.

 Hi, CMT community. Can anyone tell me if chronic fatigue is a curse of CMT? It doesn't matter how much rest I get I cant seem to get over…

Started by Martha Carrier in GeneralLatest Reply


Moderator

Plantar Fasciitis?

This seems to be a common problem through out the Ben's Friends community.  Besides the towel exercises, some find these compressions helpf…

Started by SK in GeneralLatest Reply

Discussions Replies Latest Activity

Moderator

Copper wear?

I have a Tommie Copper shirt and shorts that I wear when it's cool enough to wear under my regular clothing, and it seems to help a bit. Th…

Started by SK in General

3 11 hours ago
Reply by tga

Fatigue.

 Hi, CMT community. Can anyone tell me if chronic fatigue is a curse of CMT? It doesn't matter how much rest I get I cant seem to get over…

Started by Martha Carrier in General

4 17 hours ago
Reply by Buck

Moderator

Has anyone found a Podiatrist to be helpful for foot problems from CMT?

Just wondering if they are tried and true solution to any of the CMT foot problems? https://apma.org/learn/content.cfm?ItemNumber=992&n

Started by SK in General

2 20 hours ago
Reply by SK

Moderator

Hi members!

We've recently had some new members interested in getting involved in the group, so I thought it may be a good idea to bring up a few of th…

Started by SK in General

5 on Tuesday
Reply by SK

Moderator

Plantar Fasciitis?

This seems to be a common problem through out the Ben's Friends community.  Besides the towel exercises, some find these compressions helpf…

Started by SK in General

3 on Tuesday
Reply by Goldie

scoliosis with cmt

My son has thoracolumbar scoliosis along with his cmt.  His dr said only about a third of patience develop scoliosis like my son.  His orth…

Started by taterbug80 in General

6 on Monday
Reply by CM

PXT3003

Hi! Pharnext is developping their pleotherapeutic medication PXT3003 for CMT1a.  http://www.pharnext.com/pipeline/cmt-program Phase II was…

Started by HM in General

54 on Monday
Reply by SK

Pain and BNS combo (pxt3003)

I've had very bad pain and unpleasant feelings in nervs. I've been taking two months Naltrexone, Baclofen and Sorbitol.. during two last we…

Started by HM in General

14 on Monday
Reply by SK

DO YOU SHOP ONLINE, ESPECIALLY AT AMAZON? YOUR USUAL PURCHASES CAN HELP BEN'S FRIENDS AT NO COST TO YOU!

Amazon is running a new promotion for Amazon Smile, their program that gives money back to Non Profits. For instance, BensFriends.org (my n…

Started by Scott Orn in General

0 on Monday

so many questions

My son is 16 now. He was only recently diagnosed with CMT. He is still able to get around with no problems but the drs have told me he has…

Started by taterbug80 in General

5 on Saturday
Reply by taterbug80

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