Forum Discussions (358)

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Moderator

Did you know that there are different anesthesia procedures for those with CMT?

http://www.lindacrabtree.com/cmt/anesthetics/anesthetics_article1.html Please share your thoughts and experiences. 

Started by SK in GeneralLatest Reply

Tongue speech pronouncing words

Hi Anyone having mild difficulty with speech feeling like your tongue gets in the way? I'm not referring to vocal cords just pronouncing ce…

Started by Lola in GeneralLatest Reply


Moderator

Does anyone have partial sight or hearing loss associated with CMT?

This was new info to me, but perhaps to you, the experts. Wondering if any sight or hearing loss has been directly attributed to CMT, but a…

Started by SK in GeneralLatest Reply

Discussions Replies Latest Activity

Moderator

Did you know that there are different anesthesia procedures for those with CMT?

http://www.lindacrabtree.com/cmt/anesthetics/anesthetics_article1.html Please share your thoughts and experiences. 

Started by SK in General

6 on Saturday
Reply by David

Tongue speech pronouncing words

Hi Anyone having mild difficulty with speech feeling like your tongue gets in the way? I'm not referring to vocal cords just pronouncing ce…

Started by Lola in General

5 May 15
Reply by GrumpyCat

Exercice

If someone find anykind of help to get better. Me i found the exercice call pilataise help me to be less stiff.

Started by Crik in General

4 May 1
Reply by CM

Moderator

Does anyone have partial sight or hearing loss associated with CMT?

This was new info to me, but perhaps to you, the experts. Wondering if any sight or hearing loss has been directly attributed to CMT, but a…

Started by SK in General

8 Apr 24
Reply by SK

Money Matters

I'm quite lucky in that my wife found a full time job recently that can support us both. For the nine years of our marriage, I've been the…

Started by chad in General

8 Apr 21
Reply by chad

CMT symptoms

Hi I am from the UK and having had to wait years for a diagnosis after suffering pain and fatigue for many years and my feet becoming more…

Started by freeway in General

10 Apr 19
Reply by dodgeram

SsI success tips

I am currently on STD with the intention of applying for SSI and was looking for tips from people that have successfully been awarded SSI.…

Started by kathi in General

2 Apr 18
Reply by CM

Moderator

Mitochondrial disease mimics CMT?

Look what I found! I was doing some research on fatigue from systemic autoimmune disease for one of our members from the Sjogren's group, w…

Started by SK in General

1 Apr 12
Reply by chad

Hello and a question

Hi All I just came across this group yesterday and I was delighted to find it as I don't  know anyone else with my condition. I have CMT 4c…

Started by Sammy in General

7 Apr 12
Reply by CM

Moderator

If you went through genetic testing, which tests were done?

Here is a list of possible genetic tests available, I chose this particular lab at random https://www.invitae.com/en/physician/search/?q=Ne

Started by SK in General

11 Apr 10
Reply by SK

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