Forum Discussions (338)

Featured Discussions

CMT Awareness

Hello, I am a 3rd year podiatry student in Ireland and as part of my studies I have to present a poster on a condition we have come across…

Started by JW in GeneralLatest Reply

CMT - NEFL Gene

Hi everyone I was diagnosed with CMT 16 years ago but it was only a few years ago that they discovered the faulty gene NEFL. I just wondere…

Started by brock1 in GeneralLatest Reply

New Here, Hi Everyone!:)

Hoping to receive more understanding and awareness about CMT. My daughter and two grandchildren have CMT, we feel a bit lost at times, so i…

Started by Barbs in GeneralLatest Reply

Discussions Replies Latest Activity

My cousin Story!

Thanks everybody for the warm welcome. My cousin lives in Lebanon, He is 54 years old now, When he was a teenager ( between 10 to 12 years…

Started by Wichitamann in General

0 5 hours ago

Rebooting

A lot depends on how I start the day. I use a technique which my counsellor with MS has taught me called ‘rebooting’. What she means is tha…

Started by Oxytosin in General

4 yesterday
Reply by Oxytosin

CMT Awareness

Hello, I am a 3rd year podiatry student in Ireland and as part of my studies I have to present a poster on a condition we have come across…

Started by JW in General

2 on Friday
Reply by CM

Sacral cyts or tarlov cysts or meningoceles

Today I was diagnosed with sacral cyts. Tarlov or meningoceles cysts. I have several back problems,too. They are bulging discs. I was wonde…

Started by Karen in General

9 Dec 12
Reply by CM

CMT - NEFL Gene

Hi everyone I was diagnosed with CMT 16 years ago but it was only a few years ago that they discovered the faulty gene NEFL. I just wondere…

Started by brock1 in General

5 Dec 8
Reply by tga

Hi missed ya'll

I haven't been around for a while. I have been in more pain than I could handle for the last few weeks plus dealing with holiday activities…

Started by jnj2008 in General

2 Dec 7
Reply by tga

Moderator

CHAT

Does anyone fancy coming to chat in the room for CMT or even the main room? I used to be in a group where people came in and chatted all th…

Started by CM in General

5 Dec 6
Reply by Barbs

Moderator

What would you like others to know about CMT?

If I were conducting an interview about CMT, and you were given a segment of time, what would you choose to tell the world about this genet…

Started by SK in General

17 Dec 4
Reply by Barbs

Are There Any Scottish Members Here

I myself live in Glasgow, look forward to seeing Scottish members in here, sharing their experiences, living with CMT.:)

Started by Barbs in General

6 Dec 2
Reply by Barbs

New Here, Hi Everyone!:)

Hoping to receive more understanding and awareness about CMT. My daughter and two grandchildren have CMT, we feel a bit lost at times, so i…

Started by Barbs in General

8 Dec 2
Reply by Barbs

RSS

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LivingwithCMT.org, Click an Ad. Or Two.

Join Ben's Friends

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

"To Know The Joy of Giving"

Photos

Loading…

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service