Forum Discussions (348)

Featured Discussions

Should i get tested?

My family is affected by cmt icluding my grandads family, my mum (not so much) and my twin brother. I am a 16 year old who suffers with hea…

Started by Emily charity in GeneralLatest Reply


Moderator

Help Patients Just Like You By Joining Our Team Fundraising Campaign

ANNOUNCING OUR ANNUAL BENS FRIENDS FUNDRAISER!! All of our patient communities are banding together to raise funds by creating their own fu…

Started by Ben Munoz in GeneralLatest Reply


Moderator

Word of Caution

Hope you are finding Joy in your holiday activity! Just to remind all of you, that even though this is the season for family gatherings ,an…

Started by CM in GeneralLatest Reply

Discussions Replies Latest Activity

Hiiiii:)

Hi every1 I'm Alison from the uk. And have cmt1 was diagnosed at an early age. My 2 children also have it. I also have bouts of depression…

Started by Alison in General

1 12 hours ago
Reply by Barbs

Hello and a question

Hi All I just came across this group yesterday and I was delighted to find it as I don't  know anyone else with my condition. I have CMT 4c…

Started by Sammy in General

5 yesterday
Reply by Sammy

Hello Everyone!

Hey guys, my name is Jesse and I am a CMT patient. I'm glad to be here and just wanted to start a discussion so that I can meet new people.…

Started by Jesse Burch in General

5 on Saturday
Reply by CoolMommaDucky

New here

Just wanted to reach out and say hello

Started by Lyric1217 in General

3 Jan 18
Reply by Buck

Should i get tested?

My family is affected by cmt icluding my grandads family, my mum (not so much) and my twin brother. I am a 16 year old who suffers with hea…

Started by Emily charity in General

3 Jan 16
Reply by tga

Otterbock braces?

I am using braces called WalkOn Flex by Otterbock. They are carbon fiber and unlike any other AFOs I have seen. I walk very well in them, i…

Started by CoolMommaDucky in General

5 Jan 16
Reply by CM

CMT And Driving

First of all, sorry, I haven't been online for a while, and I wish you all a "Happy New Year". Could anyone give me any advice on a CMT suf…

Started by Barbs in General

9 Jan 15
Reply by Barbs

My cousin Story!

Thanks everybody for the warm welcome. My cousin lives in Lebanon, He is 54 years old now, When he was a teenager ( between 10 to 12 years…

Started by Wichitamann in General

3 Jan 15
Reply by Wichitamann

Moderator

Neurontin or Lyrica, which works best for you?

Which works best for your nerve pain? I started with Neurontin, but it made me 'reel' like I was inside a spinning top. Lyrica can cause fl…

Started by SK in General

24 Jan 14
Reply by CoolMommaDucky

CMT Awareness

Hello, I am a 3rd year podiatry student in Ireland and as part of my studies I have to present a poster on a condition we have come across…

Started by JohnW in General

4 Jan 13
Reply by tga

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