Forum Discussions (364)

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Introducing myself and Thank You for the add!

Hi everyone- I've "trolled" many of the topics and discussions here and have already found more info and help than many other areas I've ex…

Started by D's Dad in GeneralLatest Reply

Did you know that there are different anesthesia procedures for those with CMT?

http://www.lindacrabtree.com/cmt/anesthetics/anesthetics_article1.html Please share your thoughts and experiences. 

Started by SK in GeneralLatest Reply

Tongue speech pronouncing words

Hi Anyone having mild difficulty with speech feeling like your tongue gets in the way? I'm not referring to vocal cords just pronouncing ce…

Started by Lola in GeneralLatest Reply

Discussions Replies Latest Activity

Hi everyone.

Thank you for accepting me to this wonderful online support group. I was just diagnosed with CMT disease but I've suspected for awhile that…

Started by oceandew in General

6 on Thursday
Reply by oceandew

Prognosis Negative

I just recently visited another doctor for yet another nerve conduction study. This one was of my hands. I have lost a lot of muscle mass a…

Started by Karen in General

2 on Thursday
Reply by Karen

Tongue speech pronouncing words

Hi Anyone having mild difficulty with speech feeling like your tongue gets in the way? I'm not referring to vocal cords just pronouncing ce…

Started by Lola in General

7 Jun 20
Reply by CoolMommaDucky

Does anyone else do this???

When I'm walking, I walk with my ankles caved INWARDS, with my feet pointed OUTWARDS (if you're confused, I can show you a picture or video…

Started by YukiDev in General

5 Jun 20
Reply by CoolMommaDucky

hi

I have no idea where to start, so here it goes. Hello, my name is Alex. I am 16 years old, I enjoy reading, movies, stand up comedy, spendi…

Started by alex in General

3 Jun 17
Reply by CM

Where to start...

Hello, I'm Keith. Thank you for adding me to the group. I'll apologize up front for the length of my story. It will be long regardless of h…

Started by DoingWell53 in General

1 Jun 13
Reply by CM

Introducing myself and Thank You for the add!

Hi everyone- I've "trolled" many of the topics and discussions here and have already found more info and help than many other areas I've ex…

Started by D's Dad in General

5 Jun 6
Reply by tga

Did you know that there are different anesthesia procedures for those with CMT?

http://www.lindacrabtree.com/cmt/anesthetics/anesthetics_article1.html Please share your thoughts and experiences. 

Started by SK in General

6 May 23
Reply by David

Exercice

If someone find anykind of help to get better. Me i found the exercice call pilataise help me to be less stiff.

Started by Crik in General

4 May 1
Reply by CM

Does anyone have partial sight or hearing loss associated with CMT?

This was new info to me, but perhaps to you, the experts. Wondering if any sight or hearing loss has been directly attributed to CMT, but a…

Started by SK in General

8 Apr 24
Reply by SK

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