Forum Discussions (349)

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Hello, I'm new and have a few questions

If Charcot-Marie-Tooth is a progressive neuropathy, why isn't it terminal in most cases? Do most people reach a plateau where the disease s…

Started by StayingStrong in GeneralLatest Reply


Moderator

The flu and pneumonia vacs really worked for me, anyone else find they keep the winter illnesses away?

This was the very first time I had the vaccines, usually by the time the shots are available, I already have the flu or bronchitis, but was…

Started by SK in GeneralLatest Reply


Moderator

Hip problems?

Is hip dysplasia one of the challenges you face with CMT? Does PT help?

Started by SK in GeneralLatest Reply

Discussions Replies Latest Activity

Moderator

Any tips for staying limber in winter?

I know we have some folks here in PT, some dance, is there anything in particular that you can recommend to help us all stay limber and mor…

Started by SK in General

2 21 hours ago
Reply by SK

Hello, I'm new and have a few questions

If Charcot-Marie-Tooth is a progressive neuropathy, why isn't it terminal in most cases? Do most people reach a plateau where the disease s…

Started by StayingStrong in General

4 yesterday
Reply by blusongbird3

Moderator

The flu and pneumonia vacs really worked for me, anyone else find they keep the winter illnesses away?

This was the very first time I had the vaccines, usually by the time the shots are available, I already have the flu or bronchitis, but was…

Started by SK in General

11 on Tuesday
Reply by SK

Moderator

Hip problems?

Is hip dysplasia one of the challenges you face with CMT? Does PT help?

Started by SK in General

6 on Tuesday
Reply by SK

Moderator

Neck and shoulder pain

I'm curious as how many of us share secondary issues to our CMT. Do you have Diabetes, Blood Pressure, High or Low, Autoimmune, Allergies,…

Started by CM in General

2 on Monday
Reply by CM

Gabapentin

Hello,  Have a 15 year old daughter  with CMT that was just prescribed Gabapentin. Just curious if anyone can give me their opinion on how…

Started by kmaiken in General

13 Feb 20
Reply by SK

Moderator

Neurontin or Lyrica, which works best for you?

Which works best for your nerve pain? I started with Neurontin, but it made me 'reel' like I was inside a spinning top. Lyrica can cause fl…

Started by SK in General

36 Feb 20
Reply by SK

anyone play instruments?

I'd like to try to use music as an outlet for my depression and I was wondering if anyone has found an instrument thats easy on the hands.…

Started by Emma in General

4 Feb 20
Reply by SK

Moderator

Wind chill advisories, are you targeted?

Seems millions of us are under wind chill advisories for below zero in the double digits! BRRR!  I know that many of you are under LOTS of…

Started by SK in General

8 Feb 20
Reply by SK

PXT3003

Hi! Pharnext is developping their pleotherapeutic medication PXT3003 for CMT1a.  http://www.pharnext.com/pipeline/cmt-program Phase II was…

Started by HM in General

58 Feb 15
Reply by SK

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