Forum Discussions (278)

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Moderator

It's been HOT and HUMID, does this weather make anyone feel worse?

I felt a little better today, but the heat and humidity quickly zapped that out of me, even being out for a few minutes!  Whew! Some days I…

Started by SK in GeneralLatest Reply


Moderator

Copper wear?

I have a Tommie Copper shirt and shorts that I wear when it's cool enough to wear under my regular clothing, and it seems to help a bit. Th…

Started by SK in GeneralLatest Reply

Fatigue.

 Hi, CMT community. Can anyone tell me if chronic fatigue is a curse of CMT? It doesn't matter how much rest I get I cant seem to get over…

Started by Martha Carrier in GeneralLatest Reply

Discussions Replies Latest Activity

Moderator

It's been HOT and HUMID, does this weather make anyone feel worse?

I felt a little better today, but the heat and humidity quickly zapped that out of me, even being out for a few minutes!  Whew! Some days I…

Started by SK in General

5 2 hours ago
Reply by Mr W

Moderator

Copper wear?

I have a Tommie Copper shirt and shorts that I wear when it's cool enough to wear under my regular clothing, and it seems to help a bit. Th…

Started by SK in General

5 4 hours ago
Reply by SK

use of your legs

Hi im new here so hope im doing this right???? i use an electric wheelchair and im just wondering if this is the "norm"? is there many peop…

Started by Jenny in General

20 yesterday
Reply by khill234

Moderator

Telemedicine Patient Education

Hi, everyone.  Dr. Joan Leafman from AT Still medical school in Arizona asks to help spread the word about some research she is conducting.…

Started by Ben Munoz in General

0 yesterday

Fatigue.

 Hi, CMT community. Can anyone tell me if chronic fatigue is a curse of CMT? It doesn't matter how much rest I get I cant seem to get over…

Started by Martha Carrier in General

10 on Saturday
Reply by Phoebe

Moderator

Has anyone found a Podiatrist to be helpful for foot problems from CMT?

Just wondering if they are tried and true solution to any of the CMT foot problems? https://apma.org/learn/content.cfm?ItemNumber=992&n

Started by SK in General

2 on Thursday
Reply by SK

Moderator

Hi members!

We've recently had some new members interested in getting involved in the group, so I thought it may be a good idea to bring up a few of th…

Started by SK in General

5 Aug 26
Reply by SK

Moderator

Plantar Fasciitis?

This seems to be a common problem through out the Ben's Friends community.  Besides the towel exercises, some find these compressions helpf…

Started by SK in General

3 Aug 26
Reply by Goldie

scoliosis with cmt

My son has thoracolumbar scoliosis along with his cmt.  His dr said only about a third of patience develop scoliosis like my son.  His orth…

Started by taterbug80 in General

6 Aug 25
Reply by CM

PXT3003

Hi! Pharnext is developping their pleotherapeutic medication PXT3003 for CMT1a.  http://www.pharnext.com/pipeline/cmt-program Phase II was…

Started by HM in General

54 Aug 25
Reply by SK

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