Forum Discussions (358)

Featured Discussions

Moderator

Please welcome Writes-A-Lot, a new moderator for CMT and OPMD!

We are now cross training moderators to work on more than one community or taking on new recruits and training them on a group similar to t…

Started by SK in GeneralLatest Reply

core muscles?

Are CMT muscle issues confined to feet and hands? When getting out of bed does anyone else need to rock back and forth and sort of swing yo…

Started by Sophie in GeneralLatest Reply

muscular dystrophy/cmt

Im not sure if it really matters at this point in my life(57yrs old)but I wonder if cmt is under the umbrella of M.D. ,I  heard now there a…

Started by mrmustard in GeneralLatest Reply

Discussions Replies Latest Activity

stomach and/or bowel problems?

I have had problems all my life and just wondering if it could be related ? Also sorry I've been gone I've been sick.

Started by CoolMommaDucky in General

5 42 minutes ago
Reply by CoolMommaDucky

Moderator

What would you like others to know about CMT?

If I were conducting an interview about CMT, and you were given a segment of time, what would you choose to tell the world about this genet…

Started by SK in General

19 4 hours ago
Reply by chad

Surgery

Has anyone had an ankle fusion or TTC fusion? I am looking for some input. Please and Thank You

Started by Shawna in General

9 5 hours ago
Reply by chad

Symptoms

I have a 6 week wait before seeing a neurologist. Interested if other people have experienced the following, particularly the pain aspects:…

Started by Oxytosin in General

13 11 hours ago
Reply by chad

Moderator

If you went through genetic testing, which tests were done?

Here is a list of possible genetic tests available, I chose this particular lab at random https://www.invitae.com/en/physician/search/?q=Ne

Started by SK in General

10 12 hours ago
Reply by chad

muscular dystrophy/cmt

Im not sure if it really matters at this point in my life(57yrs old)but I wonder if cmt is under the umbrella of M.D. ,I  heard now there a…

Started by mrmustard in General

4 12 hours ago
Reply by chad

core muscles?

Are CMT muscle issues confined to feet and hands? When getting out of bed does anyone else need to rock back and forth and sort of swing yo…

Started by Sophie in General

6 yesterday
Reply by tga

Moderator

Word to the wise...Off topic

My son is a master auto tech and he has warned me to be sure to do an undercarriage wash on all vehicles to get rid of the salt mixture use…

Started by SK in General

2 on Monday
Reply by SK

Rebooting

A lot depends on how I start the day. I use a technique which my counsellor with MS has taught me called ‘rebooting’. What she means is tha…

Started by Oxytosin in General

6 on Monday
Reply by Timothy Conley

Moderator

What are you looking forward to, now that the weather is warming?

Being able to lose at least one layer of clothing has great appeal to me, being able to get out to the nursery to shop for new flowers and…

Started by SK in General

15 on Monday
Reply by SK

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