Forum Discussions (369)

Featured Discussions

Introducing myself and Thank You for the add!

Hi everyone- I've "trolled" many of the topics and discussions here and have already found more info and help than many other areas I've ex…

Started by D's Dad in GeneralLatest Reply

Did you know that there are different anesthesia procedures for those with CMT?

http://www.lindacrabtree.com/cmt/anesthetics/anesthetics_article1.html Please share your thoughts and experiences. 

Started by SK in GeneralLatest Reply

Tongue speech pronouncing words

Hi Anyone having mild difficulty with speech feeling like your tongue gets in the way? I'm not referring to vocal cords just pronouncing ce…

Started by Lola in GeneralLatest Reply

Discussions Replies Latest Activity

Thank you for the add. My Story :)

Hello, I am so excited to have found this group!  I have searched and searched for info on this disease and always come up with the same si…

Started by Tess in General

5 1 hour ago
Reply by nana

Prognosis Negative

I just recently visited another doctor for yet another nerve conduction study. This one was of my hands. I have lost a lot of muscle mass a…

Started by Karen in General

3 3 hours ago
Reply by Veronica

Advice

Over the last 15 years or more I've been told I've had lots of different things. Finally, it was neuropathy, then a couple of years ago I w…

Started by nana in General

0 11 hours ago

Does anyone else do this???

When I'm walking, I walk with my ankles caved INWARDS, with my feet pointed OUTWARDS (if you're confused, I can show you a picture or video…

Started by YukiDev in General

6 on Sunday
Reply by Veronica

Not being taken seriously - grrr

Happy Friday!   I was just talking to a coworker and mentioned how sore my legs are from just walking across the parking lot.  I have told…

Started by Tess in General

1 Aug 29
Reply by khill234

kidney issues

Sorry have been gone for so long, the usual, been in the hospital (icu twice). Anyone have weird blood test results, electrolytes, potassiu…

Started by Veronica in General

1 Aug 10
Reply by CM

Phantom feelings?

Hi, I was just wondering if anyone else experiences something similar, and if so have they found a way of combating it?When this initially…

Started by Scottish in General

2 Aug 5
Reply by Scottish

Where to start...

Hello, I'm Keith. Thank you for adding me to the group. I'll apologize up front for the length of my story. It will be long regardless of h…

Started by DoingWell53 in General

4 Aug 3
Reply by Jon Thompson

Hi everyone.

Thank you for accepting me to this wonderful online support group. I was just diagnosed with CMT disease but I've suspected for awhile that…

Started by oceandew in General

7 Aug 1
Reply by Jon Thompson

Tongue speech pronouncing words

Hi Anyone having mild difficulty with speech feeling like your tongue gets in the way? I'm not referring to vocal cords just pronouncing ce…

Started by Lola in General

7 Jun 20
Reply by CoolMommaDucky

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