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Moderator

What works best for your joint pain?

I think I need a new drug, any ideas or suggestions?

Started by SK in GeneralLatest Reply


Moderator

Chairs, do you have a favorite?

With having a bad back, finding the right chair is a challenge! I'm like Goldilocks going from one to the other! The longest periods I spen…

Started by SK in GeneralLatest Reply


Moderator

Another young man who is changing the world for the better!

Like Ben and Scott, here is another young man making a difference. He is dedicating his time, efforts, money and heart to those who are chr…

Started by SK in GeneralLatest Reply

Discussions Replies Latest Activity

Moderator

What works best for your joint pain?

I think I need a new drug, any ideas or suggestions?

Started by SK in General

5 6 hours ago
Reply by braylin's gramma

finding Housing

Hi everyone I don't know if anyone has had this problem before or not but maybe someone out here can help us.  Our landlords right now don'…

Started by jnj2008 in General

3 9 hours ago
Reply by dancermom

Moderator

Chairs, do you have a favorite?

With having a bad back, finding the right chair is a challenge! I'm like Goldilocks going from one to the other! The longest periods I spen…

Started by SK in General

11 yesterday
Reply by jnj2008

PXT3003

Hi! Pharnext is developping their pleotherapeutic medication PXT3003 for CMT1a.  http://www.pharnext.com/pipeline/cmt-program Phase II was…

Started by HM in General

49 yesterday
Reply by SK

Moderator

Which type of CMT do you have?

Though most of you have probably mentioned this in one of your responses or posts, if you have no objections, please tell me again. As you…

Started by SK in General

21 on Wednesday
Reply by SK

Moderator

Has anyone found that Wellbutrin reduces neuropathic pain?

http://www.cmtausa.org/index.php?option=com_content&view=article&id=111&catid=15&Itemid=50

Started by SK in General

2 on Tuesday
Reply by SK

Sean Vitka & Blue Redefined Patient Organization Sponsors Ben's Friends

Thrilled to announce that Ben's Friends received a $1,500 donation from Sean Vitka and Blue Redefined (http://www.blueredefined.org/), a no…

Started by Scott Orn in General

1 on Tuesday
Reply by SK

Moderator

What is your favorite gadget?

With physical challenges we are best helped by different 'gadgets'. Here are a few of my favorites, what are some of yours? This is the ver…

Started by SK in General

5 on Monday
Reply by VietVet

Moderator

Another young man who is changing the world for the better!

Like Ben and Scott, here is another young man making a difference. He is dedicating his time, efforts, money and heart to those who are chr…

Started by SK in General

0 on Sunday

Pain and BNS combo (pxt3003)

I've had very bad pain and unpleasant feelings in nervs. I've been taking two months Naltrexone, Baclofen and Sorbitol.. during two last we…

Started by HM in General

13 on Sunday
Reply by SK

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