Discussion Forum (7)

Featured Discussions

how to deal with the disease as it progresss

anyone out there that wants to talk and discuss how you deal with travelling or going on vacation?  over time, it gets more difficult to st…

Started by sumoman in GeneralLatest Reply

CMT and anesthesia

This is my first post.  I hope I am doing it right--I find it a little difficult as to how I  am to navigate here.  Re:  surgery/anesthesia…

Started by Bobbie Riffle in GeneralLatest Reply


Updating and expanding community platform to support connection among people with rare illnesses.

Ben's Friends, the network that runs this community,  is a 501(c)3 nonprofit that builds support communities for patients with rare disease…

Started by Ben Munoz in GeneralLatest Reply

Categories Discussions Latest Activity


Open discussion.

389 Apr 21
Reply by CM

New Member Check-in

If you are a new member, sign in and say, "Hi," introduce yourself, and share your story. We are not a clique. We are not elitists. We are a group of fellow sufferers, who are all in pursuit of improving our lives and better controlling our disease. We have all become friends and partners. Start your forum experience here.

7 on Saturday
New to Group! Hello, and I'm eager for advice!
by Mandy

Newbie's Guide to CMT

UNDER CONSTRUCTION! Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information.

0 No activity yet

Coping with Chronic Illness

Do you have a list of go-to, tried and true activities for coping with everything that Lyme has to throw at you? Do you need to vent your frustration, but your friends and family have found their ear plugs? Worry no longer! We have your back and are happy to hear about your successes, to learn from each other, and to help pick you up when you are down.

1 Jan 30
Reply by ModSupport

Emotional Support

Feeling down? Need to rant? This is the place. Let it rip, we are here to listen

1 Feb 2
Reply by ModSupport

Complementary Therapies

Welcome to the Complementary Therapies forum! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives with CMT. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. This is the place to discuss healing modalities that can complement medical treatment.

0 No activity yet

Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

Want to recommend a doctor, therapist, or clinic? Positive review only, please.We welcome and encourage personal comment or reviews of hospitals or doctors by name, specialty and area of the world with whom you have had a positive experience or outcome. Due to fairness, legal and other concerns, we cannot support negative reviews of practitioners by name in the public forums of the site.

3 Sep 17, 2014
Reply by CM


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