Forum Discussions (290)

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Best therapy for children ?

I'm new to all this and not sure if I'm asking in the proper place, but I'm going to go ahead and hope to get a response . I'm wondering if…

Started by Connie in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Latest Reply


Moderator

ADX71441 -- A New drug in Clinical Trials for CMT1A

Thomson Reuters – one of the world’s leading source of information – reports the approval to initiate a First-In-Man clinical study for CMT…

Started by dancermom in GeneralLatest Reply


Moderator

Passing on some info for you...

One of my friends on the BF Sjogren's Syndrome site recommended some natural pain rubs. She is sensitive to meds, so tries to use as many n…

Started by SK in GeneralLatest Reply

Discussions Replies Latest Activity

Best therapy for children ?

I'm new to all this and not sure if I'm asking in the proper place, but I'm going to go ahead and hope to get a response . I'm wondering if…

Started by Connie in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

3 on Thursday
Reply by CM

Fatigue.

 Hi, CMT community. Can anyone tell me if chronic fatigue is a curse of CMT? It doesn't matter how much rest I get I cant seem to get over…

Started by Martha Carrier in General

24 on Wednesday
Reply by CM

Moderator

ADX71441 -- A New drug in Clinical Trials for CMT1A

Thomson Reuters – one of the world’s leading source of information – reports the approval to initiate a First-In-Man clinical study for CMT…

Started by dancermom in General

1 on Tuesday
Reply by SK

Moderator

Food, what are the favorites?

Is is fried chicken or tofu? Cheetos or chocolate marshmallow milkshakes? 

Started by SK in General

14 on Monday
Reply by SK

Moderator

Passing on some info for you...

One of my friends on the BF Sjogren's Syndrome site recommended some natural pain rubs. She is sensitive to meds, so tries to use as many n…

Started by SK in General

0 on Monday

Moderator

What do you like best about Autumn?

I like to wear sweaters, jackets, scarves, and that kind of weather is just about here! I look forward to the cooling weather, to getting t…

Started by SK in General

7 on Monday
Reply by SK

Moderator

We have a new moderator on CMT!

CM is our new CMT moderator! Please congratulate and thank her, she will be working with dancermom and I to offer you all support and infor…

Started by SK in General

6 on Monday
Reply by SK

Moderator

Tell us Five Interesting Things about You

We are more than just patients -- we are people. To get to know you better, I would like to hear five interesting things about you. I'll st…

Started by dancermom in General

23 Sep 13
Reply by SK

Moderator

Does anyone use the 'foot up' brace? Here is a demo video!

This small brace is devised to correct drop foot. Does this or could this help you? https://www.youtube.com/watch?v=JleyM7a1rTQ

Started by SK in General

0 Sep 9

Moderator

What are your biggest physical challenges?

We all have them, as you know, mine is spinal. What areas of your body has CMT hit the hardest and presented the biggest challenges? I reme…

Started by SK in General

19 Sep 5
Reply by VietVet

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