Forum Discussions (364)

Featured Discussions

SsI success tips

I am currently on STD with the intention of applying for SSI and was looking for tips from people that have successfully been awarded SSI.…

Started by kathi in GeneralLatest Reply


Moderator

Mitochondrial disease mimics CMT?

Look what I found! I was doing some research on fatigue from systemic autoimmune disease for one of our members from the Sjogren's group, w…

Started by SK in GeneralLatest Reply

CMT symptoms

Hi I am from the UK and having had to wait years for a diagnosis after suffering pain and fatigue for many years and my feet becoming more…

Started by freeway in GeneralLatest Reply

Discussions Replies Latest Activity

SsI success tips

I am currently on STD with the intention of applying for SSI and was looking for tips from people that have successfully been awarded SSI.…

Started by kathi in General

2 5 hours ago
Reply by CM

Moderator

Mitochondrial disease mimics CMT?

Look what I found! I was doing some research on fatigue from systemic autoimmune disease for one of our members from the Sjogren's group, w…

Started by SK in General

1 on Monday
Reply by chad

Hello and a question

Hi All I just came across this group yesterday and I was delighted to find it as I don't  know anyone else with my condition. I have CMT 4c…

Started by Sammy in General

7 on Monday
Reply by CM

Moderator

If you went through genetic testing, which tests were done?

Here is a list of possible genetic tests available, I chose this particular lab at random https://www.invitae.com/en/physician/search/?q=Ne

Started by SK in General

11 Apr 10
Reply by SK

CMT symptoms

Hi I am from the UK and having had to wait years for a diagnosis after suffering pain and fatigue for many years and my feet becoming more…

Started by freeway in General

9 Apr 9
Reply by SK

Money Matters

I'm quite lucky in that my wife found a full time job recently that can support us both. For the nine years of our marriage, I've been the…

Started by chad in General

7 Apr 8
Reply by CM

Moderator

What would you like others to know about CMT?

If I were conducting an interview about CMT, and you were given a segment of time, what would you choose to tell the world about this genet…

Started by SK in General

22 Apr 8
Reply by CM

Questions about symptoms

I am extremely hesitant to post this, but I would like to hear other opinions.  I am a 70 year old male and I was diagnosed with CMT in the…

Started by Billw in General

4 Apr 5
Reply by Billw

Moderator

Please welcome Writes-A-Lot, a new moderator for CMT and OPMD!

We are now cross training moderators to work on more than one community or taking on new recruits and training them on a group similar to t…

Started by SK in General

6 Apr 3
Reply by SK

stomach and/or bowel problems?

I have had problems all my life and just wondering if it could be related ? Also sorry I've been gone I've been sick.

Started by CoolMommaDucky in General

9 Apr 3
Reply by SK

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