Forum Discussions (310)

Featured Discussions

Anybody from the Philippines?

would like to connect with you to share experiences and a way to vent off.. thanks

Started by rich in GeneralLatest Reply

An introduction...

Hello all,This is just a little (huge) intro since I'm new to the group. I'm a 42 year old man (boy) with CMT1A.I was diagnosed with CMT wh…

Started by chad in GeneralLatest Reply


Moderator

Who are the parents of a child with CMT?

We have an ever growing number of parents of children with CMT joining the group. Please let us know who you are and what your Doctor has s…

Started by SK in GeneralLatest Reply

Discussions Replies Latest Activity

how is.....

Hi everyone I just wanted to check in and see how everyone is doing with the weather changes? The worst part for me is the wind and trying…

Started by jnj2008 in General

0 10 hours ago

AND THIS 'TAKES THE CAKE!..INCRREDIBLE!!

If you've followed my story here, you will have noted an unnecessary spinal stenosis surgery a year ago....6 months rehab just to walk,,,Th…

Started by chuckk in General

13 16 hours ago
Reply by khill234

Moderator

Who are the parents of a child with CMT?

We have an ever growing number of parents of children with CMT joining the group. Please let us know who you are and what your Doctor has s…

Started by SK in General

5 20 hours ago
Reply by CM

An introduction...

Hello all,This is just a little (huge) intro since I'm new to the group. I'm a 42 year old man (boy) with CMT1A.I was diagnosed with CMT wh…

Started by chad in General

8 21 hours ago
Reply by CM

Anybody from the Philippines?

would like to connect with you to share experiences and a way to vent off.. thanks

Started by rich in General

1 yesterday
Reply by SK

Moderator

Trying the Lidoderm patches again...

I'm having trouble numbing my lower back long enough to lay down and get to sleep, so I'm revisiting the Lidocaine patches again. Anyone el…

Started by SK in General

2 Oct 14
Reply by SK

Moderator

checking in

It's been kinda quiet the last few days; Is every one doing well or just busy with changing seasons?Raking leaves, getting house winterized…

Started by CM in General

6 Oct 14
Reply by CM

A few questions into one....

Anyone with an experience  with acupuncture or thoughts?....I have an old college mate, he's fully licensed, and he'll do my treatments jus…

Started by chuckk in General

6 Oct 10
Reply by CM

MY YEAR LONG RIDE!!!!

Hello all....In short, had failed back surgery for spinal stenosis a year ago...I only had bad numbness beneath my feet..HEAVINESS!!!!...…

Started by chuckk in General

10 Oct 7
Reply by SK

Fatigue.

 Hi, CMT community. Can anyone tell me if chronic fatigue is a curse of CMT? It doesn't matter how much rest I get I cant seem to get over…

Started by Martha Carrier in General

28 Oct 6
Reply by chuckk

RSS

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LivingwithCMT.org, Click an Ad. Or Two.

Join Ben's Friends

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

"To Know The Joy of Giving"

Photos

Loading…

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service