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If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.

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June 2014 Community Newsletter

Posted by Ben Munoz on June 29, 2014 at 9:33am 0 Comments

Summer - the time of the year where some of our wonderful and fun memories are made. As a quote goes, "Life without love is like a year without summer."  Spend some time with your loved ones, enjoy the sights and sounds of nature and feel the…
Continue

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SK
Melinda Lang Melinda

 

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.

Forum

Which type of CMT do you have?

Started by SK in General. Last reply by SK 3 hours ago. 21 Replies

Though most of you have probably mentioned this in one of your responses or posts, if you have no objections, please tell me again. As you all know, I do not have CMT, and am still learning about it. I can read and read, but I learn more from…Continue

Chairs, do you have a favorite?

Started by SK in General. Last reply by SK 3 hours ago. 4 Replies

With having a bad back, finding the right chair is a challenge! I'm like Goldilocks going from one to the other! The longest periods I spend sitting are here on Ben's Friends and I have a special chair which I also wheel around to the kitchen and…Continue

Sean Vitka & Blue Redefined Patient Organization Sponsors Ben's Friends

Started by Scott Orn in General. Last reply by SK yesterday. 1 Reply

Thrilled to announce that Ben's Friends received a $1,500 donation from Sean Vitka and Blue Redefined (http://www.blueredefined.org/), a non profit patient organization. It's incredible to be recognized by…Continue

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Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

1. Share your story on "My Page" and personalize it to reflect who you are!
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3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

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Latest Activity


Moderator
SK replied to SK's discussion Which type of CMT do you have?
"So sorry this was such a battle for you abd. Shouldn't have to take this long or be so…"
3 hours ago
adb1x1 replied to SK's discussion Which type of CMT do you have?
"My GP has heard of it, but he told me he had only seen two people with it in 25 yrs of practice. It…"
3 hours ago

Moderator
SK replied to SK's discussion Chairs, do you have a favorite?
"Oh, what a pair we are Braylin's gramma!  Hope you soon find the perfect chair and bed! "
3 hours ago

Moderator
SK replied to SK's discussion Chairs, do you have a favorite?
"Hi Martha,  Having sold furniture for years, I think I know exactly which chair you are…"
3 hours ago
braylin's gramma replied to SK's discussion Chairs, do you have a favorite?
"I am like Goldilocks too....from chair to chair to chair to bed to whatever. Very frustrating. It…"
3 hours ago
Martha Carrier replied to SK's discussion Chairs, do you have a favorite?
"I found a low height swivel rocker at a thrift store. It's very easy to get up from and…"
4 hours ago
Martha Carrier replied to SK's discussion Which type of CMT do you have?
"Its a shame that when you tell them what you have they look at you as though you made this up. "
4 hours ago

Moderator
SK's discussion was featured

Chairs, do you have a favorite?

With having a bad back, finding the right chair is a challenge! I'm like Goldilocks going from one…See More
5 hours ago

Top Content 

1 Which type of CMT do you have?

Which type of CMT do you have?

Posted by SK on July 11, 2014

2 Is there a time of day when you are at your best/worst?

Is there a time of day when you are at your best/worst?

Posted by SK on June 30, 2014

3 Fatigue

Fatigue

Posted by Tom on July 6, 2014

4 Hammertoes?  How many have them and did you have surgery?

Hammertoes? How many have them and did you have surgery?

Posted by SK on July 1, 2014

5 Pain and BNS combo (pxt3003)

Pain and BNS combo (pxt3003)

Posted by HM on July 13, 2014

 
 
 

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