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Ben's Friends Monthly Newsletter - August 2014 Issue

Posted by Ben Munoz on August 26, 2014 at 8:37am 0 Comments

Just the Stats:

Communities: 35

Friends: 42,000+

In this issue…


Community Moderators

Melinda Lang Melinda


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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.



Started by Martha Carrier in General 16 hours ago. 0 Replies

 Hi, CMT community. Can anyone tell me if chronic fatigue is a curse of CMT? It doesn't matter how much rest I get I cant seem to get over it. I struggle to accomplish my work but sometimes I just wish I could find a supplement to help me.Continue

Has anyone found a Podiatrist to be helpful for foot problems from CMT?

Started by SK in General. Last reply by tga 22 hours ago. 1 Reply

Just wondering if they are tried and true solution to any of the CMT foot problems?https://apma.org/learn/content.cfm?ItemNumber=992&navItemNumber=558Continue

Hi members!

Started by SK in General. Last reply by SK 23 hours ago. 5 Replies

We've recently had some new members interested in getting involved in the group, so I thought it may be a good idea to bring up a few of the old discussions that they may find helpful. I also encourage all members, old and new to post discussions to…Continue

Plantar Fasciitis?

Started by SK in General. Last reply by Goldie yesterday. 3 Replies

This seems to be a common problem through out the Ben's Friends community.  Besides the towel exercises, some find these compressions helpful. Do you?…Continue

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Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

This community is brought to you by http://bensfriends.org/

Latest Activity

Martha Carrier posted a discussion


 Hi, CMT community. Can anyone tell me if chronic fatigue is a curse of CMT? It doesn't matter how…See More
16 hours ago
tga replied to SK's discussion Has anyone found a Podiatrist to be helpful for foot problems from CMT?
"Thought l answered this already. l found a good podiatrist in north Texas, Sara Suttle. She…"
22 hours ago

SK replied to SK's discussion Hi members!
"Tami, it's always good to hear from you when you can drop by! "
23 hours ago

SK replied to SK's discussion Hi members!
"Yes, it's a question that surely deserves an answer! Good thoughts and wishes to all of you!"
23 hours ago

dancermom replied to SK's discussion Hi members!
"I hope they get good answers, too, Tami. Keep us posted!"

dancermom liked SK's discussion Hi members!
Goldie replied to SK's discussion Plantar Fasciitis?
"I am going to give those compression socks a try. I have been having pain in the arch of my foot at…"
tga replied to SK's discussion Hi members!
"l don't use this group a lot but have gained some insight from doing so. Other life issues…"

Top Content 

1 use of your legs

use of your legs

Posted by Jenny on August 16, 2014

2 scoliosis with cmt

scoliosis with cmt

Posted by taterbug80 on August 22, 2014

3 Anyone still have a few good days?

Anyone still have a few good days?

Posted by khill234 on August 10, 2014

4 How long did it take you to get a diagnosis, or are you still waiting?

How long did it take you to get a diagnosis, or are you still waiting?

Posted by SK on April 5, 2014

5 Hi members!

Hi members!

Posted by SK on August 10, 2014


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First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

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