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If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.

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Blog Posts

Local Fundraiser for Ben's Friends

Posted by Scott Orn on March 22, 2015 at 10:19am 0 Comments

I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."

It was a big success as we…

Continue

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CM

 

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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.

Forum

Surgery

Started by Shawna in General. Last reply by Carm 4 hours ago. 8 Replies

Has anyone had an ankle fusion or TTC fusion? I am looking for some input. Please and Thank You

core muscles?

Started by Sophie in General. Last reply by tga 9 hours ago. 6 Replies

Are CMT muscle issues confined to feet and hands? When getting out of bed does anyone else need to rock back and forth and sort of swing your feet up and out to propel you out of bed?

stomach and/or bowel problems?

Started by CoolMommaDucky in General 12 hours ago. 0 Replies

I have had problems all my life and just wondering if it could be related ? Also sorry I've been gone I've been sick.Continue

Word to the wise...Off topic

Started by SK in General. Last reply by SK 16 hours ago. 2 Replies

My son is a master auto tech and he has warned me to be sure to do an undercarriage wash on all vehicles to get rid of the salt mixture used to treat the roads in winter. The salt is extremely corrosive. Most of the new car washes will offer this.I…Continue

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Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Welcome to LivingWithCMT.org

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

This community is brought to you by http://bensfriends.org/

Latest Activity

Carm replied to Shawna 's discussion Surgery
"To all my CMT friends out there...has anyone tried strengthening their legs to help with stability…"
4 hours ago
kelly04 liked mrmustard's discussion muscular dystrophy/cmt
8 hours ago
tga replied to Sophie's discussion core muscles?
"l for sure do the rocking thing when getting up from a chair that is too low for me. l can't…"
9 hours ago
Elizabeth Michael is now friends with SK and CoolMommaDucky
11 hours ago
CoolMommaDucky posted a discussion

stomach and/or bowel problems?

I have had problems all my life and just wondering if it could be related ? Also sorry I've been…See More
12 hours ago

Moderator
SK replied to SK's discussion Word to the wise...Off topic
"Hi Timothy, I have a Pacifica. So you are suggesting that I do NOT wash the underneath at all? It…"
16 hours ago
Timothy Conley replied to Oxytosin's discussion Rebooting
"thanks,will try this today!"
20 hours ago
Timothy Conley liked Oxytosin's discussion Rebooting
20 hours ago

Top Content 

1 Surgery

Surgery

Posted by Shawna on March 21, 2015

2 core muscles?

core muscles?

Posted by Sophie on March 29, 2015

3 If you went through genetic testing, which tests were done?

If you went through genetic testing, which tests were done?

Posted by SK on March 14, 2015

4 What are you looking forward to, now that the weather is warming?

What are you looking forward to, now that the weather is warming?

Posted by SK on March 26, 2015

5 Thanks for the add

Thanks for the add

Posted by Debra on March 23, 2015

 
 
 

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