Welcome! You're not alone.
If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.
Got some QUESTIONS?
Check our FAQ PAGE.
Read More from our First-Time-User Guide.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.
Charcot-Marie-Tooth (CMT) is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.
It's easy enough to over do it on any day of the week, but holidays can be tricky, so please remember to take it slow, take breaks, and have a good holiday!Wishing you health and happiness, SKContinue
Could it be Lilacs, Cherry blossoms, Daffodils, Magnolias, Dogwoods, Crepe Myrtles, the Lily, Crocus>As difficult as it is to choose one, I have always loved the wild violets of Spring?What are your favorites?Continue
Muscle Function & DisordersMuscles also need both calcium and magnesium to function. Calcium tenses the muscles; magnesium relaxes the muscles. Close your fist and clench it tight: that is calcium which permits…Continue
Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!
Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.
If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.
1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!
*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.
This community is brought to you by http://bensfriends.org/
Find out how you can better evaluate what option is best suited for your individual needs. Learn about the different types of health insurance and emerging trends in benefit design and affordability for individuals with rare diseases.
For more information about the Webinar, visit this link.
Read more about Global Genes,a 501(c)3 (non profit).
Posted by Sara on April 17, 2014
Posted by SK on April 16, 2014
Posted by SK on April 5, 2014
Posted by M Hanlon on March 27, 2014
Posted by SK on April 15, 2014