Welcome! You're not alone.

Getting Started:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group

Check our FAQ PAGE and First-Time-User Guide.


Since site content and usernames are google searchable, please protect your anonymity by creating a unique username.

To change your username, click here. 


All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services for sale. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, for your security.
  9. Religious content must be restricted to the prayer group.
  10. No politics please, please.

Thanks for your cooperation.

Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.



Doctors List

ClinicalTrials.gov Studies

Loading… Loading feed


Birthdays Today

Birthdays Tomorrow


Gift Store


What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting in progressive loss of muscle and touch sensation affecting the feet, legs, hands and arms. CMT disease affects approximately 1 in 2,500 people.


Tongue speech pronouncing words

Started by Lola in General. Last reply by GrumpyCat May 15. 5 Replies

HiAnyone having mild difficulty with speech feeling like your tongue gets in the way? I'm not referring to vocal cords just pronouncing certain words?Thanks lolaContinue


Started by Crik in General. Last reply by CM May 1. 4 Replies

If someone find anykind of help to get better. Me i found the exercice call pilataise help me to be less stiff.

Does anyone have partial sight or hearing loss associated with CMT?

Started by SK in General. Last reply by SK Apr 24. 8 Replies

This was new info to me, but perhaps to you, the experts. Wondering if any sight or hearing loss has been directly attributed to CMT, but a physician, or if you have done so yourself?…Continue

Money Matters

Started by chad in General. Last reply by chad Apr 21. 8 Replies

I'm quite lucky in that my wife found a full time job recently that can support us both. For the nine years of our marriage, I've been the main bread winner and, up until two years ago when our first and only child was born (we're older parents -…Continue

CMT symptoms

Started by freeway in General. Last reply by dodgeram Apr 19. 10 Replies

Hi I am from the UK and having had to wait years for a diagnosis after suffering pain and fatigue for many years and my feet becoming more and more deformed I eventually  after searching on the internet  and discovered that i had all the criteria of…Continue

Mobile App and E-Book Available for Download

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now.

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

braylin's gramma left a comment for lulu
"Hi lulu, we're glad you're here. Hope you make a lot of new friends/"
1 hour ago

Madere (dancermom) left a comment for lulu
"Hi, lulu, feel free to post a discussion to share your story by clicking the discussion tab at the…"
7 hours ago

GrumpyCat left a comment for lulu
"Welcome to the community, lulu! So glad you found us and decided to join. :-)"
15 hours ago
lulu is now a member of Charcot Marie Tooth (CMT) - Online Support Group
15 hours ago

braylin's gramma left a comment for LadyEleyne
"Welcome LadyEleyne, we're glad you joined us!"

GrumpyCat left a comment for LadyEleyne
"Welcome to the community! We are so glad you found us. If you have any questions please feel free…"
LadyEleyne is now a member of Charcot Marie Tooth (CMT) - Online Support Group
David replied to SK's discussion Did you know that there are different anesthesia procedures for those with CMT?
"Hi guys I have had more operations than hot dinners in my life, from gas to spinal block and have…"
May 23

Help Us Help Others

Follow Us

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Support Ben's Friends

Bens Friends

To Support LivingwithCMT.org, Click an Ad. Or Two.

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for the right phone numbers in your region.


CMT Support is a peer-to-peer network

To get support, give support.



BensFriends.org is proud to partner with a number of organizations to better support our members.

To learn more about our partners, please visit this link.


© 2015   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service