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Ben's Friends Monthly Newsletter - November 2014 Issue

Posted by Ben Munoz on November 27, 2014 at 8:38pm 0 Comments

Just the Stats:

Communities: 38

Friends: 44,000+

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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.

Forum

What is your muscle relaxant of choice?

Started by SK in General. Last reply by AmsterdamEric 4 hours ago. 9 Replies

Seems we all take them, at least occasionally, do you have one that works best for you?Continue

Hello, I'm new and have a few questions

Started by StayingStrong in General. Last reply by CM 5 hours ago. 5 Replies

If Charcot-Marie-Tooth is a progressive neuropathy, why isn't it terminal in most cases? Do most people reach a plateau where the disease stops progressing? Also, is there a gender, age of onset or rate of onset that gives clues as to how aggressive…Continue

Any tips for staying limber in winter?

Started by SK in General. Last reply by SK on Friday. 2 Replies

I know we have some folks here in PT, some dance, is there anything in particular that you can recommend to help us all stay limber and more mobile?Keeping up with the grand kids would be my favorite, as you are in perpetual motion when they are…Continue

The flu and pneumonia vacs really worked for me, anyone else find they keep the winter illnesses away?

Started by SK in General. Last reply by SK Feb 24. 11 Replies

This was the very first time I had the vaccines, usually by the time the shots are available, I already have the flu or bronchitis, but was lucky to get them this year and did not get sick once, even with the grand kids visiting often. Is anyone…Continue

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Welcome to LivingWithCMT.org

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

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*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

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Latest Activity

AmsterdamEric replied to SK's discussion What is your muscle relaxant of choice?
"Kava is a root found in the south pacific which Polynesians use as a mild intoxicant. It is hard…"
4 hours ago
Carm replied to SK's discussion What is your muscle relaxant of choice?
"Sorry Ruth, what exactly is Kava????"
4 hours ago

Moderator
CM left a comment for R L Keane
"Welcome to the group! Hope you find it to be helpful and share new friends and ideas. ~~~CM"
5 hours ago

Moderator
CM replied to StayingStrong's discussion Hello, I'm new and have a few questions
"It is a matter CMT itself doesn't take your life. However, secondary issues can be heart…"
5 hours ago
Ruth L keane replied to SK's discussion What is your muscle relaxant of choice?
"Kava . Really relaxes the muscles after a hard day . "
15 hours ago
HM replied to SK's discussion What is your muscle relaxant of choice?
"I take Baclofen"
yesterday

Greeter
braylin's gramma replied to SK's discussion What is your muscle relaxant of choice?
"I usually take a hot shower. Crawl into bed with my Ipad and headphone. Find some relaxation videos…"
Sunday
tga replied to SK's discussion What is your muscle relaxant of choice?
"l like Valium but most Dr won't give it. l have a script for Robaxin, but it does not work…"
Sunday

Top Content 

1 What is your muscle relaxant of choice?

What is your muscle relaxant of choice?

Posted by SK on February 28, 2015

2 Gabapentin

Gabapentin

Posted by kmaiken on February 6, 2015

3 Hello, I'm new and have a few questions

Hello, I'm new and have a few questions

Posted by StayingStrong on February 24, 2015

4 Hip problems?

Hip problems?

Posted by SK on February 20, 2015

5 anyone play instruments?

anyone play instruments?

Posted by Emma on February 5, 2015

 
 
 

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