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If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.
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Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.
Charcot-Marie-Tooth (CMT) is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.
If Charcot-Marie-Tooth is a progressive neuropathy, why isn't it terminal in most cases? Do most people reach a plateau where the disease stops progressing? Also, is there a gender, age of onset or rate of onset that gives clues as to how aggressive…Continue
I know we have some folks here in PT, some dance, is there anything in particular that you can recommend to help us all stay limber and more mobile?Keeping up with the grand kids would be my favorite, as you are in perpetual motion when they are…Continue
This was the very first time I had the vaccines, usually by the time the shots are available, I already have the flu or bronchitis, but was lucky to get them this year and did not get sick once, even with the grand kids visiting often. Is anyone…Continue
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If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.
1. Share your story on "My Page" and personalize it to reflect who you are!
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4. Welcome our new members with a comment on their page!
*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.
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Posted by SK on February 28, 2015
Posted by kmaiken on February 6, 2015
Posted by StayingStrong on February 24, 2015
Posted by SK on February 20, 2015
Posted by Emma on February 5, 2015