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Ben's Friends Monthly Newsletter - July 2014 Issue

Posted by Ben Munoz on July 31, 2014 at 11:08am 0 Comments

Just the Stats:



Welcome New Members and Greetings from Ben's Friends!


"You're a firework," as the song goes. We…

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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.


What are your biggest physical challenges?

Started by SK in General. Last reply by Karen 12 hours ago. 15 Replies

We all have them, as you know, mine is spinal. What areas of your body has CMT hit the hardest and presented the biggest challenges?I remember hammertoes, calves, hands, feet...Continue

What type of music comforts you?

Started by Armando Abrero in General. Last reply by SK on Wednesday. 3 Replies

Of course, there is no right or wrong answer. What type, brand, era, genre of music do you listen to when you're looking for comfort?Continue


Started by HM in General. Last reply by HM on Tuesday. 53 Replies

Hi!Pharnext is developping their pleotherapeutic medication PXT3003 for CMT1a.  http://www.pharnext.com/pipeline/cmt-programPhase II was positiv. Look key facts:  …Continue

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Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

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Latest Activity

Ben Munoz posted blog posts
9 hours ago
Karen replied to SK's discussion What are your biggest physical challenges?
"We could be twin zombies! No need to provide Zombie walk lessons"
12 hours ago

SK left a comment for fredinde
20 hours ago

SK left a comment for Melissa Carine
20 hours ago
braylin's gramma replied to SK's discussion What are your biggest physical challenges?
"Yup.....you can still play jnj2008......I know what you mean about the independence. I don't…"
20 hours ago
jnj2008 replied to SK's discussion What are your biggest physical challenges?
"Okay Ladies, we just need to have a zombie meeting. I could fit in perfectly too.  I think…"
jnj2008 liked SK's discussion What are your biggest physical challenges?

SK replied to SK's discussion What are your biggest physical challenges?
"I know it Karen!  LOL, I have said the same thing, the perfect zombie, the walk down pat! My…"

Top Content 

1 Which type of CMT do you have?

Which type of CMT do you have?

Posted by SK on July 11, 2014

2 Fatigue


Posted by Tom on July 6, 2014

3 What are your biggest physical challenges?

What are your biggest physical challenges?

Posted by SK on July 29, 2014

4 Pain and BNS combo (pxt3003)

Pain and BNS combo (pxt3003)

Posted by HM on July 13, 2014

5 What is your favorite gadget?

What is your favorite gadget?

Posted by SK on July 20, 2014


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