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Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 9:29am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…


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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.


Tell me something good...

Started by SK in General. Last reply by Oxytosin yesterday. 6 Replies

Lets change the mood a little, please share something good that's happened to you, or are looking forward to! Tell me somethin' good! Continue

Numb foot/feet/hand?

Started by HM in General yesterday. 0 Replies

My left foot is heavely numb. Anyone else with numb feet?Continue


Started by chuckk in General. Last reply by SK yesterday. 14 Replies

If you've followed my story here, you will have noted an unnecessary spinal stenosis surgery a year ago....6 months rehab just to walk,,,The bozo that did it wanted to put up a spinal cord stimulator up my  back to alleviate pain, BUT this would NOT…Continue

Anybody from the Philippines?

Started by rich in General. Last reply by SK yesterday. 5 Replies

would like to connect with you to share experiences and a way to vent off.. thanksContinue

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Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

1. Share your story on "My Page" and personalize it to reflect who you are!
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3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

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Latest Activity

Wayne Hinman posted a status
6 hours ago

braylin's gramma left a comment for AlexS
"Hi AlexS, we're glad your here! "
10 hours ago

braylin's gramma left a comment for Wayne Hinman
"Hi Wayne, we're glad you're here!"
10 hours ago
Scott Orn left a comment for AlexS
"Big welcome AlexS! One tip, if you have specific questions it's best to start a New Discussion…"
13 hours ago

SK left a comment for AlexS
"HI AlexS! Welcome to the group! We offer info, support and there's always the happy aspect of…"
13 hours ago

SK left a comment for Wayne Hinman
"Welcome Wayne! This is a good place to come for info and support, so please join in the discussions…"
13 hours ago
Profile IconWayne Hinman and AlexS joined Charcot Marie Tooth (CMT) - Online Support Group
13 hours ago
Oxytosin replied to SK's discussion Tell me something good...
"SK Thank you. It's been helpful to me to read what people say on this site - so…"

Top Content 



Posted by chuckk on October 15, 2014

2 Balance progression

Balance progression

Posted by CM on October 1, 2014

3 Does anyone else start with CMT symptoms on one leg?

Does anyone else start with CMT symptoms on one leg?

Posted by Mrs.TMo on October 2, 2014

4 An introduction...

An introduction...

Posted by chad on October 21, 2014



Posted by chuckk on October 5, 2014


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