Welcome! You're not alone.

If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.


1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Blog Posts

Never give up

Posted by Armando Abrero on April 11, 2014 at 5:46pm 1 Comment

Just wanted to share this inspiring video.

Laugh often. Love a lot. Be strong. Never give up.…


Community Moderators

Need a Second Opinion?


All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


Birthdays Today

Birthdays Tomorrow


  • Add Videos
  • View All

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter are not allowed in the Chat Room.   
5. Specific doctor or hospital names mentioned in a negative context, for legal reasons.    
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
Thanks for your cooperation.

ClinicalTrials.gov Studies

Loading… Loading feed


What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.


The 3 dimensions of pain, does your Doctor ask you about this?

Started by SK in General. Last reply by braylin's gramma 53 minutes ago. 1 Reply

To better  select the med most beneficial, three dimensions of pain have been established to classify yours. When I visit the , I answer an even more detailed questionnaire about what type of pain I am experiencing, do you?PAROXYSMAL PAIN - sharp,…Continue

Who is your rock, your inspiration?

Started by SK in General. Last reply by Jayme Gulyas 7 hours ago. 7 Replies

My mom and husband would be my 'rocks', they are my most concerned, most supportive.  My grand kids are my inspiration!  If anyone can get me out of bed, off the couch and excited, it's a call from one of them telling me they want to come down!…Continue

What I am doing to fight CMT

Started by Richard Wheeler in General. Last reply by SK 14 hours ago. 1 Reply

MMA 4 CMT’s Mission is “Working to raise awareness of Charcot Marie Tooth (CMT) disease through the growing sport of Mixed Martial Arts (MMA) professional fighting to their 31 million fans and to make MMA style training programs designed for and…Continue

Tags: MMA, Neuropathy, Charcot Maie Tooth, CMT

Mobile App and E-Book Available for Download!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

This community is brought to you by http://bensfriends.org/

Join the Global Genes Webinar on Health Insurance Issues

Find out how you can better evaluate what option is best suited for your individual needs. Learn about the different types of health insurance and emerging trends in benefit design and affordability for individuals with rare diseases.

Join the  FREE Navigating Insurance Issues Webinar on April 30, 2014 at 10am PST / 1pm EST / 6pm in UKRegister Now!

For more information about the Webinar, visit this link.

Read more about Global Genes,a 501(c)3 (non profit).

Latest Activity

braylin's gramma replied to SK's discussion What do you think of these high tech compact kitchens?
"I love looking at pictures of those tiny homes. I would be too claustephobic in one tho'. They…"
50 minutes ago
braylin's gramma liked SK's discussion The 3 dimensions of pain, does your Doctor ask you about this?
53 minutes ago
braylin's gramma replied to SK's discussion The 3 dimensions of pain, does your Doctor ask you about this?
"I will have to remember this.....I always tell them....that it is hard to answer that question…"
53 minutes ago

SK left a comment for Carmen
"You were a beautiful bride!"
1 hour ago

SK left a comment for Carmen
1 hour ago

SK's discussion was featured

The 3 dimensions of pain, does your Doctor ask you about this?

To better  select the med most beneficial, three dimensions of pain have been established to…See More
1 hour ago

SK posted discussions
1 hour ago

SK replied to SK's discussion What do you think of these high tech compact kitchens?
"Yes, I agree, I think they are surely for ONE person, for one dish meals! I could never use…"
2 hours ago


Loading… Loading feed


Help Us Help Others

Help Ben's Friends

Like, Follow & Forward Us!

Follow Me on Pinterest

To Support LivingwithCMT.org, Click an Ad. Or Two.

Join Ben's Friends

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

"To Know The Joy of Giving"


  • Add Photos
  • View All


BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.




© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service