Welcome

Welcome! You're not alone.

If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.

NOW....GET STARTED:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Need a Doctor or Specialist?

Blog Posts

Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 9:29am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…

Continue

Community Moderators

SK

 

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Birthdays

Birthdays Today

Birthdays Tomorrow

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.   
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons.  
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.
 

ClinicalTrials.gov Studies

Loading… Loading feed

Gift Store

 

What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.

Forum

Numb foot/feet/hand?

Started by HM in General. Last reply by CM 5 minutes ago. 7 Replies

My left foot is heavely numb. Anyone else with numb feet?Continue

dress shoes for afo brace.

Started by Veronica in General. Last reply by CM 1 hour ago. 1 Reply

Just had my fitting for a afo brace. I wear dress black pants. All I can find are neon running shoes, and shoes that look so heavy I would not be able to pick up my foot. Anyone have any other options?Continue

Tell me something good...

Started by SK in General. Last reply by SK 10 hours ago. 8 Replies

Lets change the mood a little, please share something good that's happened to you, or are looking forward to! Tell me somethin' good! Continue

AND THIS 'TAKES THE CAKE!..INCRREDIBLE!!

Started by chuckk in General. Last reply by SK on Tuesday. 14 Replies

If you've followed my story here, you will have noted an unnecessary spinal stenosis surgery a year ago....6 months rehab just to walk,,,The bozo that did it wanted to put up a spinal cord stimulator up my  back to alleviate pain, BUT this would NOT…Continue

Mobile App and E-Book Available for Download!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

This community is brought to you by http://bensfriends.org/

Latest Activity


Moderator
CM replied to HM's discussion Numb foot/feet/hand?
"I feel my feet better when I wear my moccasins in the house; more like bare feet; but, when I go…"
5 minutes ago
Rocky replied to HM's discussion Numb foot/feet/hand?
"My feet are always cold and numb. I often feel like I have socks on when I don't. I just wear…"
5 minutes ago
Rocky replied to HM's discussion Numb foot/feet/hand?
" "
9 minutes ago

Moderator
CM replied to HM's discussion Numb foot/feet/hand?
"Mine are having more numbness with weather changes; I try to do things to stimulate circulation…"
1 hour ago

Moderator
CM replied to Veronica's discussion dress shoes for afo brace.
"I wear boots with mine; usually buy one size larger and one that zip down so can get foot in easier…"
1 hour ago

Moderator
SK replied to SK's discussion Tell me something good...
"Very interesting article, Oxytosin! Goes to show you how much work is required to be a…"
10 hours ago
Veronica's discussion was featured

dress shoes for afo brace.

Just had my fitting for a afo brace. I wear dress black pants. All I can find are neon running…See More
11 hours ago

Greeter
braylin's gramma left a comment for Veronica
"I have tried crocheting, not a big fan. I can do a simple stitch, but can't follow a pattern,…"
19 hours ago

Top Content 

1 AND THIS 'TAKES THE CAKE!..INCRREDIBLE!!

AND THIS 'TAKES THE CAKE!..INCRREDIBLE!!

Posted by chuckk on October 15, 2014

2 Does anyone else start with CMT symptoms on one leg?

Does anyone else start with CMT symptoms on one leg?

Posted by Mrs.TMo on October 2, 2014

3 An introduction...

An introduction...

Posted by chad on October 21, 2014

4 MY YEAR LONG RIDE!!!!

MY YEAR LONG RIDE!!!!

Posted by chuckk on October 5, 2014

5 how is.....

how is.....

Posted by jnj2008 on October 22, 2014

 
 
 

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LivingwithCMT.org, Click an Ad. Or Two.

Join Ben's Friends

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

"To Know The Joy of Giving"

Photos

Loading…

Partners

BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

About

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service