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If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.
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I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."
It was a big success as we…Continue
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There are no birthdays today
Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.
Charcot-Marie-Tooth (CMT) is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.
Being able to lose at least one layer of clothing has great appeal to me, being able to get out to the nursery to shop for new flowers and shrubs to plant with the grandkids, and just being able to open the windows will be a wonderful change! I look…Continue
Thanks for adding me to your group. I'm 49, from Ashland, Ky, have CMT1a. Was diagnosed in 2010. My father had CMT and I grew up knowing all about the disease. I recently left my job as a full time Fedex Express driver. Unfortunately my body just…Continue
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If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.
1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!
*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.
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Posted by Debra on March 23, 2015