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Groups

 

What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting in progressive loss of muscle and touch sensation affecting the feet, legs, hands and arms. CMT disease affects approximately 1 in 2,500 people.

Forum

Making friends and playing games.

Started by Solo_Sapphire in General. Last reply by ModSupport on Tuesday. 1 Reply

I've search the Internet looking for a support group, where I can not only exchange information about this disease, but get and give emotional support to  people like myself. I want to make friends and also play games. Even the ones I suck at. Lol.I…Continue

Sad

Started by Solo_Sapphire in Emotional Support. Last reply by ModSupport Feb 2. 8 Replies

I'm sad. So sad. Lonely and scared. Continue

FP doc - Neurontin and Lyrica helpful?

Started by fielddoc in Coping with Chronic Illness. Last reply by ModSupport Jan 30. 18 Replies

Hi everyone! My name is "Field Doc," and I am an FP doctor in West Virginia. I have a new patient with this disease. He was referred to me by his Neurologist for management of his pain and primary care. I have taken over his pain medication…Continue

Tags: medication

New Member checking in

Started by Jewels in New Member Check-in. Last reply by ModSupport Jan 29. 1 Reply

Hello everyone!  Um, I guess I'm not really sure what to say.  I have CMT.  I was diagnosed when I was 30, although I had known something wasn't quite right with me for years, however, none of the docs that I saw really wanted to address it.  At the…Continue

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Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now.

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

ModSupport replied to Solo_Sapphire's discussion Making friends and playing games.
"Ewww....that sounds like a really horrible rare disease. No clue, Sapphire! But a games group would…"
Tuesday

Moderator
CM left a comment for Janet
"Welcome to you Janet! Happy you found us and that you chose to join us! We hope you do find it…"
Tuesday
Janet is now a member of Charcot Marie Tooth (CMT) - Online Support Group
Tuesday
Solo_Sapphire posted a discussion

Making friends and playing games.

I've search the Internet looking for a support group, where I can not only exchange information…See More
Tuesday

Top Content 

1 FP doc - Neurontin and Lyrica helpful?

FP doc - Neurontin and Lyrica helpful?

Posted by fielddoc on January 23, 2016

2 Sad

Sad

Posted by Solo_Sapphire on January 23, 2016

3 Making friends and playing games.

Making friends and playing games.

Posted by Solo_Sapphire on February 9, 2016

4 Breathing Issues

Breathing Issues

Posted by FB4819 on January 17, 2016

5 New Member checking in

New Member checking in

Posted by Jewels on January 27, 2016

 
 
 

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