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Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 9:29am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…

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Community Moderators

SK
CM

 

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.

Forum

I have a friend who's a wonderful person

Started by Oxytosin in General. Last reply by dancermom 12 hours ago. 5 Replies

I have a friend who’s a wonderful person. She’s very ill with incurable cancer (it’s her third), type one diabetes, 3 heart attacks so far, arthritis, lots of pain and takes 30 pills a day to keep herself going. She’s often confined to bed but still…Continue

Spinal Blocks and CMT. My experience.

Started by Karen in General. Last reply by Karen 12 hours ago. 8 Replies

Recently I had a spinal block due to two discs pressing on my sciatic nerve. Two days after I needed to run some errands. While I was out I had my legs just go out from beneath me not once but two times. The first time I was able to get back up and…Continue

Books on CMT or Helpful information from sources

Started by CM in General. Last reply by CM 14 hours ago. 9 Replies

Hi there fellow CMTers;I have a few books I've acquired that were helpful to me when learning and trying to help myself understand CMT better. Do any of you have books or resources to recommend that has helped you? I especially recognized the…Continue

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Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

This community is brought to you by http://bensfriends.org/

Latest Activity


Moderator
dancermom replied to Oxytosin's discussion I have a friend who's a wonderful person
"Aut viam inveniam aut faciam."
12 hours ago
Karen replied to Karen's discussion Spinal Blocks and CMT. My experience.
"Dear Rita,thank you for your concern. I went to your page and I cried when I read your poem. That…"
12 hours ago

Moderator
CM replied to CM's discussion Books on CMT or Helpful information from sources
"Veronica; This I'm not sure on about Vitimin C but will look into it. We all definently learn…"
14 hours ago
Rita K Morgan replied to Karen's discussion Spinal Blocks and CMT. My experience.
"Karen that is terrible, so sorry that happened to you.  I was 13 and under when U of M many…"
15 hours ago
Veronica replied to CM's discussion Books on CMT or Helpful information from sources
"Aspartame? This I did not know about. I am a avid diet soda drinker. I was reading about using…"
17 hours ago
Oxytosin replied to Oxytosin's discussion I have a friend who's a wonderful person
"We seem to be into Latin quotes. Carpe diem is the one I'm following at the moment. That…"
yesterday
Oxytosin's discussion was featured

I have a friend who's a wonderful person

I have a friend who’s a wonderful person. She’s very ill with incurable cancer (it’s her third),…See More
yesterday

Moderator
dancermom liked Oxytosin's discussion I have a friend who's a wonderful person
yesterday

Top Content 

1 Numb foot/feet/hand?

Numb foot/feet/hand?

Posted by HM on October 28, 2014

2 Cooling weather, friend or foe of CMT?

Cooling weather, friend or foe of CMT?

Posted by SK on November 3, 2014

3 American and British English

American and British English

Posted by Oxytosin on November 10, 2014

4 Childhood Memories

Childhood Memories

Posted by Oxytosin on November 6, 2014

5 Spinal Blocks and CMT.  My experience.

Spinal Blocks and CMT. My experience.

Posted by Karen on November 20, 2014

 
 
 

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