Welcome! You're not alone.
If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.
Got some QUESTIONS?
Check our FAQ PAGE.
Read More from our First-Time-User Guide.
Just the Stats:
In this issue…
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.
Charcot-Marie-Tooth (CMT) is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.
Hi, everyone. Dr. Joan Leafman from AT Still medical school in Arizona asks to help spread the word about some research she is conducting. The survey is about Telemedicine Sessions for Patient Education. If you are interested the link is here …Continue
Hi, CMT community. Can anyone tell me if chronic fatigue is a curse of CMT? It doesn't matter how much rest I get I cant seem to get over it. I struggle to accomplish my work but sometimes I just wish I could find a supplement to help me.Continue
I have a Tommie Copper shirt and shorts that I wear when it's cool enough to wear under my regular clothing, and it seems to help a bit. There are all types of compression clothing and supports. Anyone else use them and feel a difference?…Continue
Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!
Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.
If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.
1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!
*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.
This community is brought to you by http://bensfriends.org/
Posted by Jenny on August 16, 2014
Posted by Martha Carrier on August 26, 2014
Posted by taterbug80 on August 22, 2014
Posted by khill234 on August 10, 2014
Posted by SK on April 5, 2014