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If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.

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Blog Posts

Local Fundraiser for Ben's Friends

Posted by Scott Orn on March 22, 2015 at 10:19am 0 Comments

I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."

It was a big success as we…

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SK
CM

 

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.

Forum

Does anyone have partial sight or hearing loss associated with CMT?

Started by SK in General. Last reply by khill234 6 hours ago. 3 Replies

This was new info to me, but perhaps to you, the experts. Wondering if any sight or hearing loss has been directly attributed to CMT, but a physician, or if you have done so yourself?…Continue

Tongue speech pronouncing words

Started by Lola in General 10 hours ago. 0 Replies

HiAnyone having mild difficulty with speech feeling like your tongue gets in the way? I'm not referring to vocal cords just pronouncing certain words?Thanks lolaContinue

CMT symptoms

Started by freeway in General. Last reply by dodgeram 22 hours ago. 10 Replies

Hi I am from the UK and having had to wait years for a diagnosis after suffering pain and fatigue for many years and my feet becoming more and more deformed I eventually  after searching on the internet  and discovered that i had all the criteria of…Continue

SsI success tips

Started by kathi in General. Last reply by CM on Saturday. 2 Replies

I am currently on STD with the intention of applying for SSI and was looking for tips from people that have successfully been awarded SSI.I was a Contract Manager using a computer 8-10 hrs per day and can no longer do this work. I am 56 years old…Continue

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Welcome to LivingWithCMT.org

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

This community is brought to you by http://bensfriends.org/

Latest Activity

khill234 replied to SK's discussion Does anyone have partial sight or hearing loss associated with CMT?
"I have partial hearing loss which is probably due to CMTS. 5 % of people with CMTS experience…"
6 hours ago
kelly04 liked SK's discussion Does anyone have partial sight or hearing loss associated with CMT?
6 hours ago
Lola posted a discussion

Tongue speech pronouncing words

HiAnyone having mild difficulty with speech feeling like your tongue gets in the way? I'm not…See More
10 hours ago
Catherine liked SK's discussion Does anyone have partial sight or hearing loss associated with CMT?
19 hours ago

Moderator
SK replied to SK's discussion Does anyone have partial sight or hearing loss associated with CMT?
"Hi CM,  This sounds like the operation that the people who suffer with OPMD (Oculopharyngeal…"
21 hours ago

Moderator
CM replied to SK's discussion Does anyone have partial sight or hearing loss associated with CMT?
"Yes, 50% loss in left eye due to muscles in lid not lifting  lid . Had surgery to cut the…"
22 hours ago
dodgeram replied to freeway's discussion CMT symptoms
" My son had several surgeries on his feet & tendons. His feet were curling under so much…"
22 hours ago

Moderator
SK's discussion was featured

Does anyone have partial sight or hearing loss associated with CMT?

This was new info to me, but perhaps to you, the experts. Wondering if any sight or hearing loss…See More
22 hours ago

Top Content 

1 CMT symptoms

CMT symptoms

Posted by freeway on April 1, 2015

2 Money Matters

Money Matters

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3 stomach and/or bowel problems?

stomach and/or bowel problems?

Posted by CoolMommaDucky on March 30, 2015

4 core muscles?

core muscles?

Posted by Sophie on March 29, 2015

5 What are you looking forward to, now that the weather is warming?

What are you looking forward to, now that the weather is warming?

Posted by SK on March 26, 2015

 
 
 

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