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Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting in progressive loss of muscle and touch sensation affecting the feet, legs, hands and arms. CMT disease affects approximately 1 in 2,500 people.
Carl Brance from Allard will present to our group. Carl will focus his presentation on various gait abnormalities caused by CMT and how their suite of AFO (ankle-foot-orthotics) products help improve walking and function. Please message me to RSVP…Continue
My 13 year old daughter has an eventful history already, but thankfully everything has been treatable and/or manageable. Since the day she was born I've been learning and learning - always some new blip in her life. Now I found that I am heading…Continue
I live on a Military base. I'm going through this a lone currently. My support system and amazing girlfriend are back home (6 1/2 hours away). I'm having a really tough time going through this alone. The doctors have only read about CMT in there…Continue
hi all my name is Sam and this is my first time talking to other cmt suffers, don't really know how to start, would love to hear how others deal with cmt mentally and ways to not let it get u down because I have what I call funks when I don't want…Continue
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Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.
Posted by Sam on November 4, 2015
Posted by Shannon on November 4, 2015
Posted by ModSupport on November 13, 2015
Posted by CMTStrong on November 22, 2015
Posted by SubVet on November 17, 2015