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Ben's Friends Monthly Newsletter - September 2014 Issue

Posted by Ben Munoz on September 24, 2014 at 9:32am 0 Comments

Just the Stats:

Communities: 38

Friends: 42,500+

In this issue…


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Melinda Lang Melinda


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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.


how is.....

Started by jnj2008 in General 5 hours ago. 0 Replies

Hi everyoneI just wanted to check in and see how everyone is doing with the weather changes? The worst part for me is the wind and trying to keep it off my face and head. The temp is still running in the 60's around here in the daytime so that is…Continue


Started by chuckk in General. Last reply by khill234 11 hours ago. 13 Replies

If you've followed my story here, you will have noted an unnecessary spinal stenosis surgery a year ago....6 months rehab just to walk,,,The bozo that did it wanted to put up a spinal cord stimulator up my  back to alleviate pain, BUT this would NOT…Continue

Who are the parents of a child with CMT?

Started by SK in General. Last reply by CM 15 hours ago. 5 Replies

We have an ever growing number of parents of children with CMT joining the group. Please let us know who you are and what your Doctor has suggested to help you care for them, and make their life as normal as you can. I hope I phrased that correctly!Continue

An introduction...

Started by chad in General. Last reply by CM 15 hours ago. 8 Replies

Hello all,This is just a little (huge) intro since I'm new to the group. I'm a 42 year old man (boy) with CMT1A.I was diagnosed with CMT when I was around 10 years old by an extremely good pediatrician. At the time we didn't know about anyone else…Continue

Tags: chad, cmt1a, introduction

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Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

1. Share your story on "My Page" and personalize it to reflect who you are!
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3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

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Latest Activity

chad is now friends with SK and dancermom
3 hours ago
Armando Abrero left a comment for Smurfette
"Hi smurfette! Glad you found us. This site is great on support and information, especially on…"
4 hours ago
Armando Abrero left a comment for rich
"Hi rich! I'm glad you found this site. Thank you for the invitation. I actually work for…"
4 hours ago
jnj2008 posted a discussion

how is.....

Hi everyoneI just wanted to check in and see how everyone is doing with the weather changes? The…See More
5 hours ago

braylin's gramma left a comment for Cara Adams
"Welcome Cara, We're glad you are here. I hope you make a lot of new friends!"
8 hours ago
khill234 replied to chuckk's discussion AND THIS 'TAKES THE CAKE!..INCRREDIBLE!!
" Chuck I can't believe all the trouble you have gone through. It makes my journey look…"
11 hours ago

SK left a comment for Cara Adams
"Hello Cara, we're so glad you found us! Welcome to the group! Please feel at home to join in…"
11 hours ago
Scott Orn left a comment for Cara Adams
"Big welcome Cara! One tip, if you have specific questions it's best to start a New Discussion…"
12 hours ago

Top Content 

1 JUST CURIOUS plus kinda fun

JUST CURIOUS plus kinda fun

Posted by jnj2008 on September 26, 2014

2 Balance progression

Balance progression

Posted by CM on October 1, 2014

3 Does anyone manage to get a full 8 hours of sleep at a time?

Does anyone manage to get a full 8 hours of sleep at a time?

Posted by SK on September 25, 2014

4 Does anyone else start with CMT symptoms on one leg?

Does anyone else start with CMT symptoms on one leg?

Posted by Mrs.TMo on October 2, 2014

5 Symptoms


Posted by Oxytosin on September 24, 2014


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