Welcome! You're not alone.

If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.


1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Concerned About Privacy

Since content and usernames are searchable on this site, you may protect your anonymity by creating a unique username.

To change username, click here. 

Need a Doctor or Specialist?

Blog Posts

Ben's Friends Monthly Newsletter - November 2014 Issue

Posted by Ben Munoz on November 27, 2014 at 8:38pm 0 Comments

Just the Stats:

Communities: 38

Friends: 44,000+


Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.




All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.   
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons.  
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.

ClinicalTrials.gov Studies

Loading… Loading feed

Gift Store


What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.


What is your muscle relaxant of choice?

Started by SK in General. Last reply by AmsterdamEric 4 hours ago. 9 Replies

Seems we all take them, at least occasionally, do you have one that works best for you?Continue

Hello, I'm new and have a few questions

Started by StayingStrong in General. Last reply by CM 5 hours ago. 5 Replies

If Charcot-Marie-Tooth is a progressive neuropathy, why isn't it terminal in most cases? Do most people reach a plateau where the disease stops progressing? Also, is there a gender, age of onset or rate of onset that gives clues as to how aggressive…Continue

Any tips for staying limber in winter?

Started by SK in General. Last reply by SK on Friday. 2 Replies

I know we have some folks here in PT, some dance, is there anything in particular that you can recommend to help us all stay limber and more mobile?Keeping up with the grand kids would be my favorite, as you are in perpetual motion when they are…Continue

The flu and pneumonia vacs really worked for me, anyone else find they keep the winter illnesses away?

Started by SK in General. Last reply by SK Feb 24. 11 Replies

This was the very first time I had the vaccines, usually by the time the shots are available, I already have the flu or bronchitis, but was lucky to get them this year and did not get sick once, even with the grand kids visiting often. Is anyone…Continue

Mobile App and E-Book Available for Download!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Welcome to LivingWithCMT.org

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

This community is brought to you by http://bensfriends.org/

Latest Activity

AmsterdamEric replied to SK's discussion What is your muscle relaxant of choice?
"Kava is a root found in the south pacific which Polynesians use as a mild intoxicant. It is hard…"
4 hours ago
Carm replied to SK's discussion What is your muscle relaxant of choice?
"Sorry Ruth, what exactly is Kava????"
4 hours ago

CM left a comment for R L Keane
"Welcome to the group! Hope you find it to be helpful and share new friends and ideas. ~~~CM"
5 hours ago

CM replied to StayingStrong's discussion Hello, I'm new and have a few questions
"It is a matter CMT itself doesn't take your life. However, secondary issues can be heart…"
5 hours ago
Ruth L keane replied to SK's discussion What is your muscle relaxant of choice?
"Kava . Really relaxes the muscles after a hard day . "
15 hours ago
HM replied to SK's discussion What is your muscle relaxant of choice?
"I take Baclofen"

braylin's gramma replied to SK's discussion What is your muscle relaxant of choice?
"I usually take a hot shower. Crawl into bed with my Ipad and headphone. Find some relaxation videos…"
tga replied to SK's discussion What is your muscle relaxant of choice?
"l like Valium but most Dr won't give it. l have a script for Robaxin, but it does not work…"

Top Content 

1 What is your muscle relaxant of choice?

What is your muscle relaxant of choice?

Posted by SK on February 28, 2015

2 Gabapentin


Posted by kmaiken on February 6, 2015

3 Hello, I'm new and have a few questions

Hello, I'm new and have a few questions

Posted by StayingStrong on February 24, 2015

4 Hip problems?

Hip problems?

Posted by SK on February 20, 2015

5 anyone play instruments?

anyone play instruments?

Posted by Emma on February 5, 2015


Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LivingwithCMT.org, Click an Ad. Or Two.

Join Ben's Friends

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

"To Know The Joy of Giving"




BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.


© 2015   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service