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Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 9:29am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…


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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.


A day of giving thanks...

Started by SK in General. Last reply by chuckk 12 hours ago. 1 Reply

Today we Americans will be celebrating Thanksgivng, with family and friends. Besides all of the good things this day brings, it also brings added work and activities. Please take care to 'work a little, rest a lot"! Since the 'black Friday' shopping…Continue

dress shoes for afo brace.

Started by Veronica in General. Last reply by CM 20 hours ago. 9 Replies

Just had my fitting for a afo brace. I wear dress black pants. All I can find are neon running shoes, and shoes that look so heavy I would not be able to pick up my foot. Anyone have any other options?Continue


Started by Oxytosin in General. Last reply by CM 20 hours ago. 1 Reply

A lot depends on how I start the day. I use a technique which my counsellor with MS has taught me called ‘rebooting’. What she means is that when I hit a pain barrier or it all seems too difficult, I stop for a second, breath from the stomach and…Continue

Neck and shoulder pain

Started by CM in General on Monday. 0 Replies

I'm curious as how many of us share secondary issues to our CMT. Do you have Diabetes, Blood Pressure, High or Low, Autoimmune, Allergies, or spinal or back problems. Even Sleep apnea and Respiratory issues can be a secondary issue due to CMT.I've…Continue

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Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

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Latest Activity

Veronica left a comment for CM
"Happy Thanksgiving! Thank you for your positive feedback. Hope you feel well and wish all the…"
7 hours ago
chuckk replied to SK's discussion A day of giving thanks...
"I just wanted to say "Happy Thanksgiving" to all of you such wonderful and caring…"
12 hours ago
chuckk liked SK's discussion A day of giving thanks...
12 hours ago

SK's discussion was featured

A day of giving thanks...

Today we Americans will be celebrating Thanksgivng, with family and friends. Besides all of the…See More
18 hours ago

SK posted a discussion

A day of giving thanks...

Today we Americans will be celebrating Thanksgivng, with family and friends. Besides all of the…See More
18 hours ago

CM replied to Veronica's discussion dress shoes for afo brace.
"Happy Thanksgiving to you Veronica; Hope you have a blessed holiday season! Sounds like you are…"
20 hours ago

CM replied to Oxytosin's discussion Rebooting
"Oxytosin You sure hit it! Good way to think about it! I often think of a CMT'r like a…"
20 hours ago

CM liked Oxytosin's discussion Rebooting
21 hours ago

Top Content 

1 Cooling weather, friend or foe of CMT?

Cooling weather, friend or foe of CMT?

Posted by SK on November 3, 2014

2 American and British English

American and British English

Posted by Oxytosin on November 10, 2014

3 I have a friend who's a wonderful person

I have a friend who's a wonderful person

Posted by Oxytosin on November 17, 2014

4 Childhood Memories

Childhood Memories

Posted by Oxytosin on November 6, 2014

5 Spinal Blocks and CMT.  My experience.

Spinal Blocks and CMT. My experience.

Posted by Karen on November 20, 2014


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