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Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting in progressive loss of muscle and touch sensation affecting the feet, legs, hands and arms. CMT disease affects approximately 1 in 2,500 people.
Hello, I'm Keith. Thank you for adding me to the group. I'll apologize up front for the length of my story. It will be long regardless of how brief I attempt to make it. It started for me at a young age. I really didn't know it then, but the signs…Continue
Sorry have been gone for so long, the usual, been in the hospital (icu twice). Anyone have weird blood test results, electrolytes, potassium, carbon dioxide, or sodium. First my potassium went low, paralysis took over. Then carbon dioxide went off,…Continue
Thank you for accepting me to this wonderful online support group. I was just diagnosed with CMT disease but I've suspected for awhile that I had it.Does anyone else feel profound weakness in their legs? That's a big problem for me. I am working…Continue
I just recently visited another doctor for yet another nerve conduction study. This one was of my hands. I have lost a lot of muscle mass and I was told that an operation would only cause more neuropathy. My back is inoperable and now my hands. They…Continue
When I'm walking, I walk with my ankles caved INWARDS, with my feet pointed OUTWARDS (if you're confused, I can show you a picture or video of how I stand and walk :) ). So then, I'm scolded. So to try to fix it, I tilt my ankles OUTWARDS and my…Continue
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