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Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 9:29am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…


Community Moderators

Melinda Lang Melinda



All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.


An introduction...

Started by chad in General. Last reply by SK 5 hours ago. 9 Replies

Hello all,This is just a little (huge) intro since I'm new to the group. I'm a 42 year old man (boy) with CMT1A.I was diagnosed with CMT when I was around 10 years old by an extremely good pediatrician. At the time we didn't know about anyone else…Continue

Tags: chad, cmt1a, introduction


Started by chuckk in General. Last reply by SK 5 hours ago. 11 Replies

Hello all....In short, had failed back surgery for spinal stenosis a year ago...I only had bad numbness beneath my feet..HEAVINESS!!!!...An MRI 8 years ago diagnosed this, but symptoms were very mild then... then had another MRI last year…Continue

how is.....

Started by jnj2008 in General. Last reply by jnj2008 yesterday. 8 Replies

Hi everyoneI just wanted to check in and see how everyone is doing with the weather changes? The worst part for me is the wind and trying to keep it off my face and head. The temp is still running in the 60's around here in the daytime so that is…Continue


Started by chuckk in General. Last reply by khill234 on Wednesday. 13 Replies

If you've followed my story here, you will have noted an unnecessary spinal stenosis surgery a year ago....6 months rehab just to walk,,,The bozo that did it wanted to put up a spinal cord stimulator up my  back to alleviate pain, BUT this would NOT…Continue

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Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

1. Share your story on "My Page" and personalize it to reflect who you are!
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3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

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Latest Activity

braylin's gramma left a comment for Kirsty Cross
"Hi Kristy, we're glad you're here. We hope you make a lot of new friends."
43 minutes ago

braylin's gramma left a comment for Veronica
"I hope you find something on there too. I have been watching a lot of tutorials about junk…"
45 minutes ago
Scott Orn left a comment for Melinda
"Big welcome Melinda! One tip, if you have specific questions it's best to start a New…"
3 hours ago
Scott Orn left a comment for Veronica
"Big welcome Veronica! One tip, if you have specific questions it's best to start a New…"
3 hours ago
Scott Orn left a comment for Kirsty Cross
"Big welcome Kirsty Cross! One tip, if you have specific questions it's best to start a New…"
3 hours ago
Veronica left a comment for braylin's gramma
"I looked up the peyote stitch you mentioned, on you-tube. That looks so pretty, and very detailed.…"
4 hours ago

SK replied to chad's discussion An introduction...
"Hey chad,  We an always handle a caped crusader or ten around here!   Keep smiling!"
5 hours ago

SK replied to chuckk's discussion MY YEAR LONG RIDE!!!!
"How are you doing, chuckk?"
5 hours ago

Top Content 



Posted by chuckk on October 15, 2014

2 Balance progression

Balance progression

Posted by CM on October 1, 2014

3 Does anyone else start with CMT symptoms on one leg?

Does anyone else start with CMT symptoms on one leg?

Posted by Mrs.TMo on October 2, 2014

4 An introduction...

An introduction...

Posted by chad on October 21, 2014



Posted by chuckk on October 5, 2014


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