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Never give up

Posted by Armando Abrero on April 11, 2014 at 5:46pm 1 Comment

Just wanted to share this inspiring video.

Laugh often. Love a lot. Be strong. Never give up.…


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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.


Just remember, "work a little, rest a lot"!

Started by SK in General 19 minutes ago. 0 Replies

It's easy enough to over do it on any day of the week, but holidays can be tricky, so please remember to take it slow, take breaks, and have a good holiday!Wishing you health and happiness, SKContinue

Anyone have a favorite spring bloom?

Started by SK in General. Last reply by SK 8 hours ago. 16 Replies

Could it be Lilacs, Cherry blossoms, Daffodils, Magnolias, Dogwoods, Crepe Myrtles, the Lily, Crocus>As difficult as it is to choose one, I have always loved the wild violets of Spring?What are your favorites?Continue

Anyone find magnesium beneficial for relaxing the muscles?

Started by SK in General. Last reply by SK 8 hours ago. 4 Replies

Muscle Function & DisordersMuscles also need both calcium and magnesium to function. Calcium tenses the muscles; magnesium relaxes the muscles. Close your fist and clench it tight: that is calcium which permits…Continue

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Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

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Find out how you can better evaluate what option is best suited for your individual needs. Learn about the different types of health insurance and emerging trends in benefit design and affordability for individuals with rare diseases.

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Latest Activity

SK's discussion was featured

Just remember, "work a little, rest a lot"!

It's easy enough to over do it on any day of the week, but holidays can be tricky, so please…See More
18 minutes ago

SK posted discussions
19 minutes ago

SK left a comment for FELIX_407
"Welcome Felix, what a wonderful attitude you have!  There are so many people here that thin…"
2 hours ago
FELIX_407 updated their profile
5 hours ago

dancermom left a comment for FELIX_407
"Welcome, Felix, to this supportive community. Feel free to open a discussion to introduce yourself…"
5 hours ago
FELIX_407 is now a member of Charcot Marie Tooth (CMT) - Online Support Group
5 hours ago

SK left a comment for JohnCary
7 hours ago

SK replied to SK's discussion Anyone have a favorite spring bloom?
"Dear Jayme,  I can only understand how frustrating this must be to all of you, as an outsider…"
8 hours ago

Top Content 

1 just looking for some opinions

just looking for some opinions

Posted by Sara on April 17, 2014

2 Anyone have a favorite spring bloom?

Anyone have a favorite spring bloom?

Posted by SK on April 16, 2014

3 How long did it take you to get a diagnosis, or are you still waiting?

How long did it take you to get a diagnosis, or are you still waiting?

Posted by SK on April 5, 2014

4 Looking for advice

Looking for advice

Posted by M Hanlon on March 27, 2014

5 Has anyone tried the 'hurrycane'?

Has anyone tried the 'hurrycane'?

Posted by SK on April 15, 2014


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