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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting in progressive loss of muscle and touch sensation affecting the feet, legs, hands and arms. CMT disease affects approximately 1 in 2,500 people.


Does anyone else do this???

Started by YukiDev in General. Last reply by Veronica on Sunday. 6 Replies

When I'm walking, I walk with my ankles caved INWARDS, with my feet pointed OUTWARDS (if you're confused, I can show you a picture or video of how I stand and walk :) ). So then, I'm scolded. So to try to fix it, I tilt my ankles OUTWARDS and my…Continue

Not being taken seriously - grrr

Started by Tess in General. Last reply by khill234 on Saturday. 1 Reply

Happy Friday! I was just talking to a coworker and mentioned how sore my legs are from just walking across the parking lot.  I have told this particular person before that I have CMT and that is why I can't walk very far without pain.  He says to…Continue

Tags: CMT

Thank you for the add. My Story :)

Started by Tess in General. Last reply by Tess Aug 19. 2 Replies

Hello,I am so excited to have found this group!  I have searched and searched for info on this disease and always come up with the same sites until this one :)  I just want to be able to talk to people that are going through the same things I am,…Continue

Tags: pain, walking, introduction

kidney issues

Started by Veronica in General. Last reply by CM Aug 10. 1 Reply

Sorry have been gone for so long, the usual, been in the hospital (icu twice). Anyone have weird blood test results, electrolytes, potassium, carbon dioxide, or sodium. First my potassium went low, paralysis took over. Then carbon dioxide went off,…Continue

Phantom feelings?

Started by Scottish in General. Last reply by Scottish Aug 5. 2 Replies

Hi, I was just wondering if anyone else experiences something similar, and if so have they found a way of combating it?When this initially started happening a few years ago, it was a very minor problem but has gotten considerably worse and now keeps…Continue

Where to start...

Started by DoingWell53 in General. Last reply by Jon Thompson Aug 3. 4 Replies

Hello, I'm Keith. Thank you for adding me to the group. I'll apologize up front for the length of my story. It will be long regardless of how brief I attempt to make it.  It started for me at a young age. I really didn't know it then, but the signs…Continue

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Latest Activity

CM left a comment for nana
"Welcome Nana! We are glad to have you join us here and hope  you find the interests and…"
7 hours ago
nana is now a member of Charcot Marie Tooth (CMT) - Online Support Group
7 hours ago
Profile Icontracy and Sibby joined Charcot Marie Tooth (CMT) - Online Support Group
Aug 11
Wendy Krauss left a comment for Sibby
"Welcome Sibby, start discussions, ask questions, we're here for the same reasons"
Aug 11

CM replied to Veronica's discussion kidney issues
" "
Aug 10
Erin left a comment for Wendy Krauss
"Thank you I have a lot to say about this disease but also need other opinions. Thanks for the warm…"
Aug 10
Wendy Krauss left a comment for Erin
"Welcome erin"
Aug 10

Ben Munoz left a comment for Erin
"Hi! We're glad you are here. Feel free to jump in by clicking the Discussion tab above and…"
Aug 9

Top Content 

1 kidney issues

kidney issues

Posted by Veronica on August 2, 2015

2 Thank you for the add. My Story :)

Thank you for the add. My Story :)

Posted by Tess on August 18, 2015

3 Not being taken seriously - grrr

Not being taken seriously - grrr

Posted by Tess on August 21, 2015

4 Does anyone else do this???

Does anyone else do this???

Posted by YukiDev on June 8, 2015

5 11224576_10153450967423911_694681771252401242_n


Added by Rich on August 31, 2015


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