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If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.
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Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…Continue
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Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.
Charcot-Marie-Tooth (CMT) is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.
Today we Americans will be celebrating Thanksgivng, with family and friends. Besides all of the good things this day brings, it also brings added work and activities. Please take care to 'work a little, rest a lot"! Since the 'black Friday' shopping…Continue
Just had my fitting for a afo brace. I wear dress black pants. All I can find are neon running shoes, and shoes that look so heavy I would not be able to pick up my foot. Anyone have any other options?Continue
A lot depends on how I start the day. I use a technique which my counsellor with MS has taught me called ‘rebooting’. What she means is that when I hit a pain barrier or it all seems too difficult, I stop for a second, breath from the stomach and…Continue
I'm curious as how many of us share secondary issues to our CMT. Do you have Diabetes, Blood Pressure, High or Low, Autoimmune, Allergies, or spinal or back problems. Even Sleep apnea and Respiratory issues can be a secondary issue due to CMT.I've…Continue
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If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.
1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!
*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.
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Posted by SK on November 3, 2014
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Posted by Karen on November 20, 2014