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Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 9:29am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…


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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.


Numb foot/feet/hand?

Started by HM in General. Last reply by CM 5 minutes ago. 7 Replies

My left foot is heavely numb. Anyone else with numb feet?Continue

dress shoes for afo brace.

Started by Veronica in General. Last reply by CM 1 hour ago. 1 Reply

Just had my fitting for a afo brace. I wear dress black pants. All I can find are neon running shoes, and shoes that look so heavy I would not be able to pick up my foot. Anyone have any other options?Continue

Tell me something good...

Started by SK in General. Last reply by SK 10 hours ago. 8 Replies

Lets change the mood a little, please share something good that's happened to you, or are looking forward to! Tell me somethin' good! Continue


Started by chuckk in General. Last reply by SK on Tuesday. 14 Replies

If you've followed my story here, you will have noted an unnecessary spinal stenosis surgery a year ago....6 months rehab just to walk,,,The bozo that did it wanted to put up a spinal cord stimulator up my  back to alleviate pain, BUT this would NOT…Continue

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Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

1. Share your story on "My Page" and personalize it to reflect who you are!
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3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

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Latest Activity

CM replied to HM's discussion Numb foot/feet/hand?
"I feel my feet better when I wear my moccasins in the house; more like bare feet; but, when I go…"
5 minutes ago
Rocky replied to HM's discussion Numb foot/feet/hand?
"My feet are always cold and numb. I often feel like I have socks on when I don't. I just wear…"
5 minutes ago
Rocky replied to HM's discussion Numb foot/feet/hand?
" "
9 minutes ago

CM replied to HM's discussion Numb foot/feet/hand?
"Mine are having more numbness with weather changes; I try to do things to stimulate circulation…"
1 hour ago

CM replied to Veronica's discussion dress shoes for afo brace.
"I wear boots with mine; usually buy one size larger and one that zip down so can get foot in easier…"
1 hour ago

SK replied to SK's discussion Tell me something good...
"Very interesting article, Oxytosin! Goes to show you how much work is required to be a…"
10 hours ago
Veronica's discussion was featured

dress shoes for afo brace.

Just had my fitting for a afo brace. I wear dress black pants. All I can find are neon running…See More
11 hours ago

braylin's gramma left a comment for Veronica
"I have tried crocheting, not a big fan. I can do a simple stitch, but can't follow a pattern,…"
19 hours ago

Top Content 



Posted by chuckk on October 15, 2014

2 Does anyone else start with CMT symptoms on one leg?

Does anyone else start with CMT symptoms on one leg?

Posted by Mrs.TMo on October 2, 2014

3 An introduction...

An introduction...

Posted by chad on October 21, 2014



Posted by chuckk on October 5, 2014

5 how is.....

how is.....

Posted by jnj2008 on October 22, 2014


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