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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting in progressive loss of muscle and touch sensation affecting the feet, legs, hands and arms. CMT disease affects approximately 1 in 2,500 people.


Hi everyone.

Started by oceandew in General. Last reply by oceandew Jul 23. 6 Replies

Thank you for accepting me to this wonderful online support group. I was just diagnosed with CMT disease but I've suspected for awhile that I had it.Does anyone else feel profound weakness in their legs? That's a big problem for me. I am working…Continue

Prognosis Negative

Started by Karen in General. Last reply by Karen Jul 23. 2 Replies

I just recently visited another doctor for yet another nerve conduction study. This one was of my hands. I have lost a lot of muscle mass and I was told that an operation would only cause more neuropathy. My back is inoperable and now my hands. They…Continue

Tongue speech pronouncing words

Started by Lola in General. Last reply by CoolMommaDucky Jun 20. 7 Replies

HiAnyone having mild difficulty with speech feeling like your tongue gets in the way? I'm not referring to vocal cords just pronouncing certain words?Thanks lolaContinue

Does anyone else do this???

Started by YukiDev in General. Last reply by CoolMommaDucky Jun 20. 5 Replies

When I'm walking, I walk with my ankles caved INWARDS, with my feet pointed OUTWARDS (if you're confused, I can show you a picture or video of how I stand and walk :) ). So then, I'm scolded. So to try to fix it, I tilt my ankles OUTWARDS and my…Continue


Started by alex in General. Last reply by CM Jun 17. 3 Replies

I have no idea where to start, so here it goes. Hello, my name is Alex. I am 16 years old, I enjoy reading, movies, stand up comedy, spending time with my friends, studying history, martial arts, and the UFC. When I was very little I was diagnosed…Continue

Where to start...

Started by DoingWell53 in General. Last reply by CM Jun 13. 1 Reply

Hello, I'm Keith. Thank you for adding me to the group. I'll apologize up front for the length of my story. It will be long regardless of how brief I attempt to make it.  It started for me at a young age. I really didn't know it then, but the signs…Continue

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Latest Activity

Stealth4450 left a comment for Madere (dancermom)
"Has anyone had the foot surgery and now feels they are close to being back to normal?"
14 hours ago
Stealth4450 left a comment for Madere (dancermom)
"Thanks dancermom. You are my first contact on this site and Im really not sure what to expect. I…"
14 hours ago
Austin is now a member of Charcot Marie Tooth (CMT) - Online Support Group
Wendy Krauss left a comment for Stealth4450
"Welcome stealth, your at a great place for support and info"

Madere (dancermom) left a comment for Stealth4450
"Welcome, Stealth, to this supportive community. Feel free to open a discussion to introduce…"
Stealth4450 is now a member of Charcot Marie Tooth (CMT) - Online Support Group
Wendy Krauss left a comment for jackie
"Welcome Jackie, start av discussion to get feed back on the questions to ask your dr. This is a…"
Jul 23

CM left a comment for jackie
"Welcome Jackie; Glad you have joined us here and do hope you find the information and support you…"
Jul 23

Top Content 

1 Hi everyone.

Hi everyone.

Posted by oceandew on July 21, 2015

2 Prognosis Negative

Prognosis Negative

Posted by Karen on July 22, 2015

3 hi


Posted by alex on June 15, 2015

4 Tongue speech pronouncing words

Tongue speech pronouncing words

Posted by Lola on April 20, 2015


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