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CMT Awareness Month - Get Involved with #Unselfies4CMT

Posted by CMT Spin Girl on September 6, 2014 at 8:15am 0 Comments

In this age Social Media, sharing your life experiences has become the rule, rather than the exception.  We share everything…family events, good times, even pictures of our food.  There’s another element of social sharing that has become both…

Continue

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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.

Forum

It's been HOT and HUMID, does this weather make anyone feel worse?

Started by SK in General. Last reply by SK 3 hours ago. 17 Replies

I felt a little better today, but the heat and humidity quickly zapped that out of me, even being out for a few minutes!  Whew! Some days I'm just such a light weight!  Can you relate?Continue

Almanac says that winter will be longer, colder, wetter, with above average snow fall for the Atlantic Corridor!

Started by SK in General 7 hours ago. 0 Replies

UM! I can hardly wait! Here is a link to the site for you to look up your area and prediction! http://www.almanac.com/weatherJust find your zone and click on the weather tab!Continue

Food, what are the favorites?

Started by SK in General. Last reply by jnj2008 yesterday. 15 Replies

Is is fried chicken or tofu? Cheetos or chocolate marshmallow milkshakes? Continue

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Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

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Latest Activity


Moderator
SK replied to SK's discussion It's been HOT and HUMID, does this weather make anyone feel worse?
"Oh I agree! My Rheumatologist even suggested I would do better in dry climates, but unless I can…"
3 hours ago
Mr W replied to SK's discussion It's been HOT and HUMID, does this weather make anyone feel worse?
"My wife has been on a kick for years that when the kids are grown and gone, we will move to…"
4 hours ago

Moderator
CM replied to SK's discussion It's been HOT and HUMID, does this weather make anyone feel worse?
"I hear you on knowing you aren't crazy; I went until age 40 wondering why I was so different…"
4 hours ago

Moderator
SK's discussion was featured

Almanac says that winter will be longer, colder, wetter, with above average snow fall for the Atlantic Corridor!

UM! I can hardly wait! Here is a link to the site for you to look up your area and prediction! …See More
7 hours ago

Moderator
SK posted a discussion

Almanac says that winter will be longer, colder, wetter, with above average snow fall for the Atlantic Corridor!

UM! I can hardly wait! Here is a link to the site for you to look up your area and prediction! …See More
7 hours ago

Moderator
SK replied to SK's discussion Has anyone been diagnosed with CMT1B or CMT1D?
"These are the VERY rare ones!"
7 hours ago
Karen replied to SK's discussion It's been HOT and HUMID, does this weather make anyone feel worse?
"I can't stand heat and humidity! I thought that it was me,but the idea of an electrical short…"
12 hours ago

Greeter
braylin's gramma left a comment for SparklePony77
"Welcome Sparkle....we're glad you joined us☺"
yesterday

Top Content 

1 Fatigue.

Fatigue.

Posted by Martha Carrier on August 26, 2014

2 Tell us Five Interesting Things about You

Tell us Five Interesting Things about You

Posted by dancermom on September 10, 2014

3 It's been HOT and HUMID, does this weather make anyone feel worse?

It's been HOT and HUMID, does this weather make anyone feel worse?

Posted by SK on September 1, 2014

4 What do you like best about Autumn?

What do you like best about Autumn?

Posted by SK on September 13, 2014

5 Food, what are the favorites?

Food, what are the favorites?

Posted by SK on September 12, 2014

 
 
 

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