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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting in progressive loss of muscle and touch sensation affecting the feet, legs, hands and arms. CMT disease affects approximately 1 in 2,500 people.



Started by jp in General. Last reply by jp Oct 2. 6 Replies

Hi everyone. I was diagnosed this year with having very mild symptoms of x-linked (they think) CMT type 2. My brother has it much more severely than I do. As a result of this my (new - August 1st) husband and I have made the decision to begin the…Continue

CT Question

Started by Restless in General. Last reply by Restless Sep 29. 2 Replies

     I haven't had a proper diagnoses  as of 1994.  It is for sure a neurological disease.  First the experts called it  CT disease, then they called it Periphal Neuropathy.  They are so close in the nature.  Is there somewhere I can get a proper…Continue

Happy CMT Awareness Month!

Started by YukiDev in General. Last reply by chad Sep 29. 1 Reply

By the way! Happy CMT Awareness Month to you all! In honor of the terrible things Charcot Marie Tooth disease does to a patient's feet, I'm posting a picture of my icky feet LOL Here's my high arches, numb toes, and my usually cold feet!I haven't…Continue

Tags: My, feet, Month, Awareness, CMT

Tongue speech pronouncing words

Started by Lola in General. Last reply by SubVet Sep 28. 8 Replies

HiAnyone having mild difficulty with speech feeling like your tongue gets in the way? I'm not referring to vocal cords just pronouncing certain words?Thanks lolaContinue

Not being taken seriously - grrr

Started by Tess in General. Last reply by SubVet Sep 28. 10 Replies

Happy Friday! I was just talking to a coworker and mentioned how sore my legs are from just walking across the parking lot.  I have told this particular person before that I have CMT and that is why I can't walk very far without pain.  He says to…Continue

Tags: CMT

Getting help and support

Started by YukiDev in General Sep 28. 0 Replies

I just wanted to keep you all in the loop: I've spoken with my high school's social worker about talking to my mom. She said she would try calling my mom, but I told her that if she can't do anything, I'm calling my local MDA after school

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Top Content 

1 Not being taken seriously - grrr

Not being taken seriously - grrr

Posted by Tess on August 21, 2015

2 Small Nerve Fiber Involvement in CMT1A

Small Nerve Fiber Involvement in CMT1A

Posted by chad on September 20, 2015

3 Prognosis Negative

Prognosis Negative

Posted by Karen on July 22, 2015

4 PGD and IVF


Posted by jp on September 30, 2015

5 Tongue speech pronouncing words

Tongue speech pronouncing words

Posted by Lola on April 20, 2015


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