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If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.
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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.
Charcot-Marie-Tooth (CMT) is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.
I know I've been gone for a couple of months, without warning, and I apologize to each and every one of you. There's been a lot going on, all long stories, all up-hill climbs...My daughter-in-law finally had her surgery yesterday, and NO cancer was…Continue
Hi every1 I'm Alison from the uk. And have cmt1 was diagnosed at an early age. My 2 children also have it. I also have bouts of depression not completely down to cmt. Although I have deteriorated significantly the past year and a half. And feel…Continue
Hi AllI just came across this group yesterday and I was delighted to find it as I don't know anyone else with my condition.I have CMT 4c and battle with balance and walking.I have always felt ambivalent about having kids however recently I am more…Continue
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If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.
1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!
*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.
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Posted by Jesse Burch on January 16, 2015
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Posted by SK on January 29, 2015