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Ben's Friends Monthly Newsletter - November 2014 Issue

Posted by Ben Munoz on November 27, 2014 at 8:38pm 0 Comments

Just the Stats:

Communities: 38

Friends: 44,000+


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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.



Started by Oxytosin in General. Last reply by Oxytosin yesterday. 4 Replies

A lot depends on how I start the day. I use a technique which my counsellor with MS has taught me called ‘rebooting’. What she means is that when I hit a pain barrier or it all seems too difficult, I stop for a second, breath from the stomach and…Continue

CMT Awareness

Started by JW in General. Last reply by CM yesterday. 2 Replies

Hello,I am a 3rd year podiatry student in Ireland and as part of my studies I have to present a poster on a condition we have come across in clinic. I have decided to do CMT as I came across a teenager with suspect CMT that we referred on. I was…Continue

Sacral cyts or tarlov cysts or meningoceles

Started by Karen in General. Last reply by CM Dec 12. 9 Replies

Today I was diagnosed with sacral cyts. Tarlov or meningoceles cysts. I have several back problems,too. They are bulging discs. I was wondering if anyone else has this problem with the addition of CMT? From reading,this is classified as a rare…Continue


Started by brock1 in General. Last reply by tga Dec 8. 5 Replies

Hi everyone I was diagnosed with CMT 16 years ago but it was only a few years ago that they discovered the faulty gene NEFL. I just wondered if there is anyone on here with the same who would like to share their stories?? look forward to hearing…Continue

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Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

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Latest Activity

braylin's gramma left a comment for Wichitamann
"Welcome Wichitamann, we are glad your joined us!"
14 hours ago
Scott Orn left a comment for Wichitamann
"Wonderful welcome Wichitamann! One tip, if you have specific questions it's best to start a…"
14 hours ago
Oxytosin replied to Oxytosin's discussion Rebooting
"Yes, my counsellor talks about breathing from the stomach and breathing through to the back.…"

CM replied to JW's discussion CMT Awareness
"I had extremely high arches in young years and walked on my toes 99% of the time. Flat shoes…"
tga replied to JW's discussion CMT Awareness
"One thing l have read about is the flattening of feet as a precursor to the high arches. My…"
Tom replied to Oxytosin's discussion Rebooting
"That's a really good idea.  Recently I have started to look into "Mindfulness"…"

CM left a comment for Wichitamann
"Welcome Wichitamann, Glad you have an interest in learning and helping to bring advocacy and…"

dancermom left a comment for Wichitamann
"Welcome, Wichitamann, to this supportive community. Feel free to open a discussion to introduce…"

Top Content 

1 What would you like others to know about CMT?

What would you like others to know about CMT?

Posted by SK on December 1, 2014

2 Rebooting


Posted by Oxytosin on November 24, 2014

3 Hi missed ya'll

Hi missed ya'll

Posted by jnj2008 on December 6, 2014

4 I have a friend who's a wonderful person

I have a friend who's a wonderful person

Posted by Oxytosin on November 17, 2014

5 A day of giving thanks...

A day of giving thanks...

Posted by SK on November 26, 2014


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