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If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.
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Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.
Charcot-Marie-Tooth (CMT) is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.
I live in North CarolinaI was kinda wondering where everyone lives. I know this has probably been done before but I think it would be fun to update and it is something fun for me to do. Plus I will admit, we are trying to move and I just was curious…Continue
I have a 6 week wait before seeing a neurologist. Interested if other people have experienced the following, particularly the pain aspects:Pain in ankles, top of foot, sole and heel (bottom of foot paper-thin), feet drag slightly, I stumble and walk…Continue
I am scheduled to have a round of three injections for discs that are impinging on my sciatic nerve. Has any one else had this? If so,did it help? Did CMT get worse? Thanks for any info you have. Karen
Thanks to Renie, moderator of LWTN, for sharing the links of the basic forms and worksheets that can help you organize your medical information and also prepare for a doctor visit.Here's the list:…Continue
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If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.
1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!
*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.
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Posted by jnj2008 on September 26, 2014
Posted by SK on September 24, 2014
Posted by dancermom on September 10, 2014
Posted by SK on September 25, 2014
Posted by Martha Carrier on August 26, 2014