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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting in progressive loss of muscle and touch sensation affecting the feet, legs, hands and arms. CMT disease affects approximately 1 in 2,500 people.

Forum

Tongue speech pronouncing words

Started by Lola in General. Last reply by CoolMommaDucky Jun 20. 7 Replies

HiAnyone having mild difficulty with speech feeling like your tongue gets in the way? I'm not referring to vocal cords just pronouncing certain words?Thanks lolaContinue

Does anyone else do this???

Started by YukiDev in General. Last reply by CoolMommaDucky Jun 20. 5 Replies

When I'm walking, I walk with my ankles caved INWARDS, with my feet pointed OUTWARDS (if you're confused, I can show you a picture or video of how I stand and walk :) ). So then, I'm scolded. So to try to fix it, I tilt my ankles OUTWARDS and my…Continue

hi

Started by alex in General. Last reply by CM Jun 17. 3 Replies

I have no idea where to start, so here it goes. Hello, my name is Alex. I am 16 years old, I enjoy reading, movies, stand up comedy, spending time with my friends, studying history, martial arts, and the UFC. When I was very little I was diagnosed…Continue

Where to start...

Started by DoingWell53 in General. Last reply by CM Jun 13. 1 Reply

Hello, I'm Keith. Thank you for adding me to the group. I'll apologize up front for the length of my story. It will be long regardless of how brief I attempt to make it.  It started for me at a young age. I really didn't know it then, but the signs…Continue

Introducing myself and Thank You for the add!

Started by D's Dad in General. Last reply by tga Jun 6. 5 Replies

Hi everyone-I've "trolled" many of the topics and discussions here and have already found more info and help than many other areas I've explored...this is the place for me :-)I'm a 38 year old new father last year, I am currently undergoing CMT…Continue

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Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now.

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

Rods left a comment for CM
"Thank you for welcoming me. I'm new to cmt, still coping up with the disease.."
Jun 25

Moderator
CM left a comment for Barbara Johnson
"Welcome Barbara; Glad to have you join and learn about support for your daughter. It is difficult…"
Jun 25
Profile IconBarbara Johnson, Rods and SuperBrandon joined Charcot Marie Tooth (CMT) - Online Support Group
Jun 25
Rods updated their profile
Jun 25

Moderator
CM left a comment for Rods
"Welcome Rodylen; We are glad you joined us. Start a new discussion and tell us what you want to…"
Jun 25

Moderator
CM left a comment for SuperBrandon
"Welcome SuperBrandon! Glad you joined us; Please feel free to begin a new discussion introducing…"
Jun 25

Moderator
Madere (dancermom) left a comment for belle
"Welcome, belle, to this supportive community. Feel free to open a discussion to introduce yourself…"
Jun 23
belle is now a member of Charcot Marie Tooth (CMT) - Online Support Group
Jun 23

Top Content 

1 Does anyone else do this???

Does anyone else do this???

Posted by YukiDev on June 8, 2015

2 Introducing myself and Thank You for the add!

Introducing myself and Thank You for the add!

Posted by D's Dad on June 4, 2015

3 hi

hi

Posted by alex on June 15, 2015

4 Tongue speech pronouncing words

Tongue speech pronouncing words

Posted by Lola on April 20, 2015

5 Where to start...

Where to start...

Posted by DoingWell53 on June 12, 2015

 
 
 

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