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If your family has been affected by Charcot Marie Tooth, consider Charcot Marie Tooth Support Network second home.


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CMT Awareness Month - Get Involved with #Unselfies4CMT

Posted by CMT Spin Girl on September 6, 2014 at 8:15am 0 Comments

In this age Social Media, sharing your life experiences has become the rule, rather than the exception.  We share everything…family events, good times, even pictures of our food.  There’s another element of social sharing that has become both…


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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.



Started by Martha Carrier in General. Last reply by CM 15 hours ago. 24 Replies

 Hi, CMT community. Can anyone tell me if chronic fatigue is a curse of CMT? It doesn't matter how much rest I get I cant seem to get over it. I struggle to accomplish my work but sometimes I just wish I could find a supplement to help me.Continue

ADX71441 -- A New drug in Clinical Trials for CMT1A

Started by dancermom in General. Last reply by SK 16 hours ago. 1 Reply

Thomson Reuters – one of the world’s leading source of information – reports the approval to initiate a First-In-Man clinical study for CMT1A. The study will be conducted by …Continue

Food, what are the favorites?

Started by SK in General. Last reply by SK yesterday. 14 Replies

Is is fried chicken or tofu? Cheetos or chocolate marshmallow milkshakes? Continue

Passing on some info for you...

Started by SK in General yesterday. 0 Replies

One of my friends on the BF Sjogren's Syndrome site recommended some natural pain rubs. She is sensitive to meds, so tries to use as many natural products as possible. She uses Topricin cream for nerve pain…Continue

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Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

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Latest Activity

Profile Iconmsauco and Connie were featured
9 minutes ago

dancermom is now friends with Parent and msauco
58 minutes ago

dancermom left a comment for Parent
"Welcome, Parent, to this supportive community. Feel free to open a discussion to introduce yourself…"
1 hour ago
Profile IconParent, Connie and msauco joined Charcot Marie Tooth (CMT) - Online Support Group
1 hour ago
Connie and SK are now friends
14 hours ago

CM replied to Martha Carrier's discussion Fatigue.
"Agreed SK; Great suggestion! I drink lots of water and always have but it is one thing more and…"
15 hours ago

braylin's gramma left a comment for msauco
"Hi msauco....we're glad you're here!"
16 hours ago

braylin's gramma left a comment for Connie
"Hi Connie...we're glad you joined us. "
16 hours ago

Top Content 

1 Fatigue.


Posted by Martha Carrier on August 26, 2014

2 Tell us Five Interesting Things about You

Tell us Five Interesting Things about You

Posted by dancermom on September 10, 2014

3 scoliosis with cmt

scoliosis with cmt

Posted by taterbug80 on August 22, 2014

4 use of your legs

use of your legs

Posted by Jenny on August 16, 2014

5 What do you like best about Autumn?

What do you like best about Autumn?

Posted by SK on September 13, 2014


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