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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting in progressive loss of muscle and touch sensation affecting the feet, legs, hands and arms. CMT disease affects approximately 1 in 2,500 people.


keyhole surgery

Started by Veronica in General 22 hours ago. 0 Replies

Hi Everyone, Doctor asked today if I would consider keyhole surgeryon my toes. He said it just involves a small cut under each toe. No pins, removing of bones or hospitals. He would move the tendons around. It should take care of the overlapping of…Continue

New to Group! Hello, and I'm eager for advice!

Started by Mandy in New Member Check-in Apr 23. 0 Replies

Hi Everyone- I'm very thankful to have found this group! I'll try to summarize my experience in a nutshell:I'm an almost 53 year old woman, wife and mother of 4, full-time elementary school teacher, and just found out that I have CMTX through the…Continue

Not being taken seriously - grrr

Started by Tess in General. Last reply by CM Apr 21. 12 Replies

Happy Friday! I was just talking to a coworker and mentioned how sore my legs are from just walking across the parking lot.  I have told this particular person before that I have CMT and that is why I can't walk very far without pain.  He says to…Continue

Tags: CMT


Started by strengthfromwithin in New Member Check-in. Last reply by strengthfromwithin Apr 20. 2 Replies

Hi.  I am so glad to have found this group.  I'm 40 and was diagnosed with CMT a year ago this month.  I've always suspected something "wasn't right" but just chalked it up to being out of shape.  I thought if I'd just work out more then I would…Continue

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Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

CM left a comment for Kattybug
"Welcome! Glad you joined us and hope you find the support and friendship you are looking for. Best…"
5 hours ago
Kattybug is now a member of Charcot Marie Tooth (CMT) - Online Support Group
11 hours ago
Veronica posted a discussion

keyhole surgery

Hi Everyone, Doctor asked today if I would consider keyhole surgeryon my toes. He said it just…See More
22 hours ago

CM left a comment for Kate
"Welcome! Glad to have you Kate. I know it will be helpful for you learn more and share! CM"

Top Content 

1 New Member checking in

New Member checking in

Posted by Jewels on January 27, 2016

2 Hello!


Posted by strengthfromwithin on April 18, 2016

3 CMT - NEFL Gene


Posted by brock1 on December 8, 2014

4 Not being taken seriously - grrr

Not being taken seriously - grrr

Posted by Tess on August 21, 2015

5 CMT and anesthesia

CMT and anesthesia

Posted by Bobbie Riffle on December 5, 2015


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