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Ben's Friends Monthly Newsletter - July 2014 Issue

Posted by Ben Munoz on July 31, 2014 at 11:08am 0 Comments

Just the Stats:

Communities:36

Friends:41,000+



Welcome New Members and Greetings from Ben's Friends!

 

"You're a firework," as the song goes. We…
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SK
Melinda Lang Melinda

 

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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What is Charcot-Marie-Tooth?

Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting to loss of muscle and touch sensation. CMT affects the feet, legs, hands and arms.

Charcot-Marie-Tooth (CMT)  is a genetically and clinically heterogeneous group of inherited disorders of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. CMT disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the United Kingdom and 125,000 people in the USA.

Forum

use of your legs

Started by Jenny in General. Last reply by Dinny 2 hours ago. 12 Replies

Hi im new here so hope im doing this right???? i use an electric wheelchair and im just wondering if this is the "norm"? is there many people who is unable to walk? x

How long did it take you to get a diagnosis, or are you still waiting?

Started by SK in General. Last reply by CM yesterday. 34 Replies

It took me 7 years after a car accident that I could never get over, to get a full diagnosis, and still they suspect other things.  My General Practitioner was on the right track when he repeatedly ran tests for Sjogren's Syndrome, and finally it…Continue

Have you had a CMT related surgery?

Started by SK in General. Last reply by CM yesterday. 3 Replies

Please share your experiences with us. Continue

Have orthotic insoles been beneficial to any of you?

Started by SK in General. Last reply by Phoebe yesterday. 4 Replies

I know that various Drs, including podiatrists, and Chiropractors can have custom inserts made, but there seems to also be a big trend on the Dr Schools and of many other store bought orthotics.Anyone find them helpful?Continue

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Welcome to LivingWithCMT.org!

If you or a loved one has been affected by Charcot-Marie-Tooth (CMT) also known as Hereditary Motor and Sensory Neuropathy (HMSN), this is the place for you. The purpose of our community is to provide patients, families and friends affected with CMT/HMSN a place to find support, information, and most importantly a place to connect! Please feel free to suggest new ideas, because this is YOUR community.

Allow this community to become a part of your life. . .

1. Share your story on "My Page" and personalize it to reflect who you are!
2. Upload pictures and videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page!

*Please keep in mind this site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to give you information to help enable you to make informed decisions about your healthcare with guidance of healthcare professionals.

This community is brought to you by http://bensfriends.org/

Latest Activity

Dinny replied to Jenny's discussion use of your legs
"I am still walking but have fallen several times and my GP referred me to a…"
2 hours ago
CM commented on CMT Spin Girl's video
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Charcot-Marie-Tooth Recognition & Living On

"Hooray for you to take a terrible and tragic thing to make it for the good of others and that you…"
6 hours ago
HM commented on HM's video
11 hours ago

Moderator
SK liked HM's video
12 hours ago

VietVet just added their location.
(via Member Map)

12 hours ago
VietVet commented on HM's video
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Beethoven opus 27 nro 2 mov1,2.; Heikki Mesterton piano

"Beautiful, comfort for the soul.  Thank you so much for sharing this wonderful piece of music…"
12 hours ago
VietVet liked HM's video
12 hours ago

Moderator
SK liked HM's video
19 hours ago

Top Content 

1 use of your legs

use of your legs

Posted by Jenny on August 16, 2014

2 Anyone still have a few good days?

Anyone still have a few good days?

Posted by khill234 on August 10, 2014

3 How long did it take you to get a diagnosis, or are you still waiting?

How long did it take you to get a diagnosis, or are you still waiting?

Posted by SK on April 5, 2014

4 What are your biggest physical challenges?

What are your biggest physical challenges?

Posted by SK on July 29, 2014

5 The origin of the word 'pain',seems fitting, doesn't it?

The origin of the word 'pain',seems fitting, doesn't it?

Posted by SK on August 7, 2014

 
 
 

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