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Charcot-Marie-Tooth (CMT) is a rare, inherited, neurological disorder which affects the nerves, resulting in progressive loss of muscle and touch sensation affecting the feet, legs, hands and arms. CMT disease affects approximately 1 in 2,500 people.
When I'm walking, I walk with my ankles caved INWARDS, with my feet pointed OUTWARDS (if you're confused, I can show you a picture or video of how I stand and walk :) ). So then, I'm scolded. So to try to fix it, I tilt my ankles OUTWARDS and my…Continue
Happy Friday! I was just talking to a coworker and mentioned how sore my legs are from just walking across the parking lot. I have told this particular person before that I have CMT and that is why I can't walk very far without pain. He says to…Continue
Hello,I am so excited to have found this group! I have searched and searched for info on this disease and always come up with the same sites until this one :) I just want to be able to talk to people that are going through the same things I am,…Continue
Sorry have been gone for so long, the usual, been in the hospital (icu twice). Anyone have weird blood test results, electrolytes, potassium, carbon dioxide, or sodium. First my potassium went low, paralysis took over. Then carbon dioxide went off,…Continue
Hi, I was just wondering if anyone else experiences something similar, and if so have they found a way of combating it?When this initially started happening a few years ago, it was a very minor problem but has gotten considerably worse and now keeps…Continue
Hello, I'm Keith. Thank you for adding me to the group. I'll apologize up front for the length of my story. It will be long regardless of how brief I attempt to make it. It started for me at a young age. I really didn't know it then, but the signs…Continue
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Posted by Veronica on August 2, 2015
Posted by Tess on August 18, 2015
Posted by Tess on August 21, 2015
Posted by YukiDev on June 8, 2015
Added by Rich on August 31, 2015